Ivana Bacik (Independent) | Oireachtas source

He said it would be a disaster and an appalling act of cultural and social vandalism because of the enormous value that the Guthrie cards can provide for future health programmes for the Irish people generally and to add to our knowledge and information about genetic conditions in the population. It does seem appalling that the cards are to be destroyed. The critical issue at this point is to inform people of their right to intervene between now and 31 March. The HSE needs to do more to inform parents of the need to ensure that their children?s cards are retained if they wish to do so, by 31 March.