Seanad debates

Thursday, 4 October 2012

Adjournment Matters

Respite Care Services

3:40 pm

Photo of John WhelanJohn Whelan (Labour) | Oireachtas source

I intend no disrespect but that is more or less the same answer I received from the Muiríosa Foundation one month ago and from the Department of Health when I made contact last week in respect of this matter. It does not get to the underlying problem whatsoever. Everyone involved including the families affected know full well about the nature of the cutbacks and the strain on resources.

I caution the Minister of State that the share-a-break model being peddled by the Muiríosa Foundation and its chief executive is fraught with dangers in terms of the health and safety of the clients involved. It puts Down's syndrome children at risk. I implore the Minister of State to use his good offices to discuss the matter with the Muiríosa Foundation. The foundation is only starting to engage with families now after the horse has bolted and the stable door has been closed and that is not the way to do business. This has come like a bolt from the blue for these families.

I understand that no meaningful savings will accrue from what is proposed. The clients are going to end up back in hospital - in institutionalised care - which will cost taxpayers and society a great deal more in the long term. Much of the debate in respect of the delivery of health services in recent weeks has been characterised as a struggle between right and left. I would characterise what is happening in this instance as a struggle between right and wrong. It is wrong to place children with Down's syndrome at risk, particularly in circumstances where savings will not accrue. Consultation has not taken place in respect of this matter. The Government and the Department must realise that unless this matter is resolved through ministerial intervention, those who are affected will end up protesting at the gates of Leinster House.

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