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Seanad: An tOrd Gnó - Order of Business (28 Feb 2023)

Fiona O'Loughlin: ...and work for those who elected them, in an appropriate manner. Today is rare disease day. In Ireland, it is estimated that 300,000 people are living with a rare disease. However, Irish rare disease patients are forced to wait over one third longer than their EU counterparts to access approved orphan drugs. This is an appeal on behalf of those who need better access to life-saving...

Joint Oireachtas Committee on Disability Matters: Raising Awareness of the Lived Experience of Congregated Settings: Discussion (9 Feb 2023)

Fiona O'Loughlin: ...private home and the nursing home, where people can live independently but support and monitoring is available at the same time. We do not do enough of it at all in Ireland. A gentleman called Pat O'Mahony wrote an excellent book, mainly geared towards older people, but the same principle could be used. When people need to move, for example, from a big house in the countryside, because...

Joint Oireachtas Committee on Education and Skills: Young Social Innovators: Discussion (28 Jun 2022)

Fiona O'Loughlin: ...I will be raising a Commencement matter in the Seanad. I reckon I will cover what I want to say in the allocated eight minutes. It has been very refreshing to listen to all the students. Senator Pat Casey is an incredible advocate for the school and what they are doing. He shared with me a video that they put together, which is excellent. I commend them on that. In terms of social...

Seanad: Sláintecare Implementation: Statements (19 Oct 2021)

Fiona O'Loughlin: ...so much finance had to be devoted to trying to fight this virus, it is incredible that the Minister has been able to commit finance and time and effort to new initiatives. It is welcome. The roll-out of Patisiran is one of those initiatives. I took up with the Minister personally and raised here the case of Mr. Pat Tinsley, someone I know well and who is a good friend. I refer to the...

Seanad: CervicalCheck Tribunal (Amendment) Bill 2021: Second Stage (15 Jul 2021)

Fiona O'Loughlin: I take this opportunity to thank the Minister for sanctioning the drug patisiran last weekend. It was wonderful news for the cohort of 35 patients who have amyloidosis. I am delighted for Pat Tinsley, about whom I have spoken to the Minister and whose situation I have raised several times in the House. This is a life-changing drug. While I appreciate that the access programme has to be...

Seanad: Report of Independent Review Group Jadotville: Statements (15 Jul 2021)

Fiona O'Loughlin: I cannot but be moved and touched by the emotion Senator Craughwell has shown and I empathise with him and feel every bit of that emotion, as I think many of us in the Chamber do. I thank the Minister and commend him on his formal apology to those who served in the "A" battalion and to their families, who have supported them throughout the years. I also acknowledge the fact that the Minister...

Seanad: An tOrd Gnó - Order of Business (13 Jul 2021)

Fiona O'Loughlin: ...must seek to make our country a safer place for women and for all. That Bill certainly would be another piece of the armoury. I thank the Minister, Deputy Donnelly, for his sanctioning the drug, patisiran, at the weekend. Members would have heard me speak about Pat Tinsley and his need for this lifesaving drug. Only this day last week I raised this issue in the Seanad. I was thrilled...

Seanad: An tOrd Gnó - Order of Business (6 Jul 2021)

Fiona O'Loughlin: I second the Order of Business. Members will remember my raising in the House the case of Mr. Pat Tinsley and his very difficult and debilitating disease, amyloidosis. I called for a debate on how the extra €50 million in the budget for battling rare diseases is being spent. This morning, Deputy Pádraig O'Sullivan is launching a Bill that would address this matter. It is very...

Seanad: Good Friday Agreement: Motion (10 May 2021)

Fiona O'Loughlin: ...grown up in a different world. We need to ensure we never go back. I want to give voice to the women in the Good Friday Agreement: Monica McWilliams, Mo Mowlam, Liz O'Donnell and Bríd Rogers. Pat Hume was a tireless supporter. I heard Eileen Paisley speak about the work women did in the background and they were doing it for their children. Seamus Heaney in "The Cure at Troy"...

Seanad: An tOrd Gnó - Order of Business (8 Feb 2021)

Fiona O'Loughlin: ...so as to be close to their family units but they have not been allowed to do so. We need to do that. We also need to reimagine how we live our lives as we get older. A Newbridge resident, Mr. Pat O'Mahony, has written an excellent book on community living and coming together. An example of such community living is McCauley Place in Naas. Some may have seen it or heard about it. Some...

Seanad: Nithe i dtosach suíonna - Commencement Matters: Medicinal Products (16 Dec 2020)

Fiona O'Loughlin: ...it here, is the area of hereditary amyloidosis. Like many Members, I would not have heard about this very debilitating and difficult disease if it had not affected somebody that I know very well. Pat Tinsley is a well known and well loved member of the Newbridge community whose life has been absolutely destroyed by this degenerative disease. This debilitating and fatal illness attacks...

Seanad: Nithe i dtosach suíonna - Commencement Matters: Medicinal Products (16 Dec 2020)

Fiona O'Loughlin: I have listened closely to what the Minister of State has said and I accept that last February and July, a decision was made in the negative on patisiran but things have changed rapidly. The fact that an extra €50 million was included in the budget in order to treat rare diseases is important and an absolute game changer. I accept, of course, that there has to be criteria for the...

Seanad: Recognition of Irish Military Service at Jadotville in 1961: Statements (11 Nov 2020)

Fiona O'Loughlin: ...in which Irish troops were involved was the siege of Jadotville. The odds at the time were stacked against the Irish contingent. They were lightly armed and had only one truck, two jeeps and patchy radio communications when they were attacked by a larger force of almost 4,000 troops. The Irish commanding officer, Commandant Pat Quinlan, was an astute tactician, and his soldiers...

Seanad: An tOrd Gnó - Order of Business (22 Oct 2020)

Fiona O'Loughlin: I endorse, support and second Senator Gavan's call. It is really important. We have to examine human rights throughout the world and see what we can do. The issue I raise relates to my friend, Pat Tinsley, whom I have spoken about in the House previously. Pat and 29 others have been diagnosed with amyloidosis. No treatment is available in this country, although it is available in...

Seanad: An tOrd Gnó - Order of Business (30 Sep 2020)

Fiona O'Loughlin: I want to tell the Cathaoirleach, the Leader and Members of the House about my friend Pat Tinsley. In many ways, he is the heart and soul of the community in Newbridge. Over the past number of years every sporting and community gathering was defined by him as a local photographer. Sadly, that has not happened in the past 18 months because Pat has been in declining health. He has been...

Joint Oireachtas Committee on Education and Skills: WorldSkills Competition 2019: Discussion (24 Sep 2019)

Fiona O'Loughlin: ...behalf of the committee, I welcome Mr. Brownlee, CEO; Mr. Ray English, chair of WorldSkills Ireland; Mr. Luke O'Keeffe; Mr. Ryan Dempsey; Mr. Ryan McLoughlin; Ms Megan Yeates; Ms Hanna Mathe; Mr. Pat Twomey; Mr. Chris Kehoe; Mr. Adam Flynn; Mr. Jack Lynch and; Mr. Mark Wasson, who all represented Ireland. I also welcome a number of people in the Gallery. Every team needs to have a good...

Joint Oireachtas Committee on Education and Skills: Use of Reduced Timetables: Discussion (30 May 2019)

Fiona O'Loughlin: ..., the committee will discuss what it has heard and make recommendations to the Minister and the Department. Delegates have been grouped thematically. On behalf of the committee, I welcome Mr. Patrick Reilly, mental health worker at Pavee Point Traveller and Roma Centre; Ms Lorraine Dempsey, information and policy officer of the Special Needs Parents Association, Mr. Adam Harris, who is...

Joint Oireachtas Committee on Education and Skills: Use of Reduced Timetables: Discussion (30 May 2019)

Fiona O'Loughlin: I thank Mr. Golden and call on Mr. Pat Goff, CEO of the Irish Primary Principals' Network, IPPN, to speak.

Topical Issue Debate: Youth Services (6 Apr 2017)

Fiona O'Loughlin: ...I suggest that we set up a meeting with the Minister of State, Deputy McEntee, the volunteers and community. I want to pay particular tribute to the volunteers, including Lisa, Kevin, Debbie, Leo, Pat and others, who have put in Trojan work in working with the young people of Rathangan in a voluntary capacity. They have taken on different community projects. I dread to think what will...

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