Results 1-4 of 4 for lyme disease segment:8877470

Joint Oireachtas Committee on Disability Matters: Role of Disabled Persons Organisations and Self Advocacy in Providing Equal Opportunities under the UN Convention on the Rights of Persons with Disabilities Implementation: Discussion (8 Apr 2024)

...Matters for the invitation to attend here today and discuss our role in self-advocacy under the UNCRPD. We are here to provide an insight based on our lived experiences that patients with Lyme disease and co-infections are adequately represented and treated in a timely manner while adhering to international best practice. We feel strongly that there needs to be greater awareness of Lyme...

Joint Oireachtas Committee on Disability Matters: Role of Disabled Persons Organisations and Self Advocacy in Providing Equal Opportunities under the UN Convention on the Rights of Persons with Disabilities Implementation: Discussion (8 Apr 2024)

Mr. Anthony Morris: It is estimated 1.3 billion people in the world have a disability, or 16% of its population, and 70% of those people have an invisible disease. I am one of those people. You could look at me today and think, “There is nothing wrong with this guy”. I played football for Kerry. I captained my county and played at every grade. I have a first class honours...

Joint Oireachtas Committee on Disability Matters: Role of Disabled Persons Organisations and Self Advocacy in Providing Equal Opportunities under the UN Convention on the Rights of Persons with Disabilities Implementation: Discussion (8 Apr 2024)

Ms Kerry Lawless: I am here as a self-advocate. I also have Lyme disease. It was Lyme disease that upturned my life in 2007. By 2009, I had been forced to take redundancy on medical grounds. At that time, I was the research manager in the National Adult Literacy Agency, NALA, a position which was equivalent to that of assistant principal officer. I was earning €70,000 at the time...

Joint Oireachtas Committee on Disability Matters: Role of Disabled Persons Organisations and Self Advocacy in Providing Equal Opportunities under the UN Convention on the Rights of Persons with Disabilities Implementation: Discussion (8 Apr 2024)

Fiona O'Loughlin: ...we speak about invisible disability and Kathy, Anthony and Kerry brought that very much to the fore. They spoke about how much their lives have been compromised by the disability they have because of Lyme disease. Obviously, there are also other diseases and conditions whereby a person looks very well and appears to be well capable of living a full life. It was very interesting to hear...