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Joint Oireachtas Committee on Health: Health Services for Persons with Lung Fibrosis: Discussion (24 Apr 2024)

Seán Crowe: ...at Beaumont Hospital, and Ms Olive McCafferty, senior physiotherapist with the heart and lung transplant unit at the Mater University Hospital. Before we commence, I remind the witnesses of the long-standing parliamentary practice that they should not comment on, criticise or make charges against a person or entity by name or in such a way as to make him or her or it identifiable, or...

Joint Oireachtas Committee on Health: Health Services for Persons with Lung Fibrosis: Discussion (24 Apr 2024)

...to be, I have been significantly impacted by lung fibrosis. My father, Dr. Michael MacAuley, passed away from the disease in 2012. My sister, Margaret, was diagnosed in 2020 and received a double long transplant in October just gone. Thankfully, she is with us in the Gallery. My brother, Joseph, has been diagnosed with the condition and is currently living well in Australia. On top of...

Joint Oireachtas Committee on Health: Health Services for Persons with Lung Fibrosis: Discussion (24 Apr 2024)

John Lahart: ...bits. There are some things I am very happy to take on here. I wish to ask the CEO of the Irish Lung Fibrosis Association a couple of questions. Why does ILFA not receive any State funding, how long has that gone on, and how much does it cost to run ILFA?

Joint Oireachtas Committee on Health: Health Services for Persons with Lung Fibrosis: Discussion (24 Apr 2024)

Seán Crowe: ...in relation to that. On the postcode lottery aspect, this is an awful question to ask but where is the worst place to be and where are the better places to be as far as that is concerned? We had long Covid people before us last week. Again, there are problems. The Mater was mentioned today. There is a problem with the systems talking if someone's heart specialist is in the Mater and...

Joint Oireachtas Committee on Health: Health Services for Persons with Lung Fibrosis: Discussion (24 Apr 2024)

...not be able to do the right tests. They may not know there is a specialist care centre out they could get referred to. As a result, that is where we are finding patients are ending up taking a long time to get diagnosed and have issued once they are diagnosed. They are not getting the care they need. The specialist centres, in contrast to that, are able to provide, as Dr. Hurley was...