Results 1-6 of 6 for drugs segment:8855525
- Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)
...of money on bandages though not as much as those with the severe forms. However, they may not qualify for the hardship scheme or the medial card but also these bandages are not covered under the drugs payment scheme, so they just have to buy them in their pharmacy. A small tube of Cavilon costs €20. When you are putting Mepilex and Tubifast on top of that then, the costs do add...
- Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)
...?ad Hickey: There is no cure or treatments for EB, so it is very much a management of the condition at the moment. We have a submission from a company with the NCP at the moment to reimburse a drug to help with wound healing. We hope that will be successful. There is a gene therapy that has been approved by the FDA over in the US. It is a topical treatment to help with wound healing...
- Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)
...term very lightly - the diagnosis, the less is available to a person. A huge cohort of our families living with simplex work, so that would max them out of applying for a medical card. With the drugs payment scheme, if the dressing are on it, which a lot of them are not, people still have to pay €80 per month to access a certain amount of dressings. As my colleagues said earlier,...
- Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)
Róisín Shortall: I take it all those are either available on the medical card or drug payment scheme.
- Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)
...We hope to get a decision on that in the next few months. The first gene therapy is in the process of being submitted to the EMA. It is already available in the United States where the Food and Drug Administration approved it last year. That is having a significant affect on people with recessive dystrophic EB, a certain type of severe EB. The horizon is looking good but it will be a...
- Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)
.... In the next ten years, people with EB will find there are several treatments they are facing. The gene therapy is for a specific form of EB. It is one of the most severe forms. In addition, drugs are being repurposed from other areas and may benefit EB patients. There are also the other wound healing agents that are coming on board. They are showing a significant difference as well.