Search for drugs segment:7643087 (KildareStreet.com)

An tOrd Gnó - Order of Business (17 Dec 2019): John Curran: I regret having to raise this issue again. It concerns the plight of 25 children who are suffering with SMA. The Taoiseach will be aware that in June last year, a decision was made that the drug, Spinraza, would be made available for those children. We are almost at the end of the year, six months on, and the vast majority of those children have not started their initial treatment nor have...
An tOrd Gnó - Order of Business (17 Dec 2019): Tom Neville: ...for CF patients aged 12 years and over, with at least one Delta-F508 gene mutation, which affects up to 80% of the CF population in Ireland, as was stated. This is subject to approval of the drug by the European Medicines Agency. Once the approval has been sanctioned, will the Taoiseach indicate the timeline that will be put in place so that we will see patients availing of this drug?

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