Results 1-20 of 34 for data protection segment:6656117

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

...committee for the invitation to discuss the provisions of the general scheme for the health information and patient safety Bill, in particular those provisions relating to a proposed role for the Data Protection Commissioner, which is Ireland's national data protection supervisory authority. I am joined by my colleague, Dale Sunderland, deputy commissioner. He leads the function of...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Mr. Muiris O'Connor: We actually have prepared briefing material that covers the rationale for our inclusion of the role for the Data Protection Commissioner in the various aspects of the Bill, which I could supply in written form. We are aware of the reservations expressed about section 3 and the data protection consent exemption. We will work with the Office of the Data Protection...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Ms Helen Dixon: Typically, Departments would engage directly with the data protection authority when considering preparation of legislative measures that may constitute an interference with data privacy rights. In this case my understanding is that there was a series of meetings in 2012 and 2013 directly between the Department of Health and the data protection authority. There was no...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Ms Rachel Flynn: The European Commission conducted a review of the legal framework or information governance frameworks on the sharing of information in European jurisdictions. We have data protection legislation in this area and general data protection regulation, GDPR, is coming down the tracks in 2018. Other jurisdictions have in place at a national level either an information...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Mr. Muiris O'Connor: In response to the Vice Chairman's opening question about the roles of the Data Protection Commissioner. I understand it may have reservations about some or all of the roles. I could send the committee a short note tomorrow on the rationale that underpinned the inclusion of the Data Protection Commissioner in the various roles. It might be helpful. The committee can...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

...'s concern about sharing information, that is a real issue, especially at the coalface in hospitals. In other jurisdictions, there is legislation covering electronic health records which not only protects patients' privacy but also deals with consent, sharing information across professionals, and the use of secondary data for researchers. We do not have such legislation in this country...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

...Helen Dixon: In terms of the Deputy's question about whether it is within the purview of States to conduct health research in the public's interests, it absolutely is. As I mentioned, the general data protection regulation, which will become law in 2018, specially sets out in Article 9 that health research can, subject to member state law, be conducted in certain cases without the...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Ms Helen Dixon: I thank Deputy Durkan for his comments. His question related to the implementation of data matching and sharing projects. He asked whether, with a system that has so many steps in it, actual implementation can occur in health research that is in the public interest. Health research concerns the processing of sensitive personal data, which means it is inevitable that there...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Ms Helen Dixon: In regard to consultation between the Department of Health and the Data Protection Commissioner, I think Mr. Muiris O'Connor referenced earlier that it had in fact taken place some years prior to the publication of the Bill. In fact, that was the case, the consultation took placer a number of years ago. It was prior to the general data protection regulation being enacted...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

...consultation, it was extensive at an earlier point in the formulation of the general scheme. In recent months each party has been respectively digesting and studying the implications of the EU data protection regulation. From today, we commit to a series of intensive engagements with the Data Protection Commissioner to work through the issues, which we do not believe are insurmountable....

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

...and Ms Louise Kenny for their valuable contributions and insights. Following this engagement and our upcoming engagement with the Health Information and Quality Authority and the Office of the Data Protection Commissioner the committee will present its views on the draft legislation, which will be informed by these engagements, to the Minister. We will now suspend for a couple of...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Kate O'Connell: ...St. James's Hospital but that would have nothing to do with the community setting. They do not want people in the community setting to know anything about their HIV status. With stigma, how do we protect the patient's right to keep that as their own private business and limit the amount of people who can access such data? Sharing data is one thing, but when one starts putting...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

...to talk about the health information and patient safety Bill. This Bill aims to facilitate efficient and effective health information systems in the interests of enhancing our capacity to utilise data and information to plan and deliver safe quality health services. I would like to introduce myself and my colleagues. I am Muiris O’Connor, assistant secretary in charge of the...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Billy Kelleher: .... There have also been calls for flexibility to be shown without compromising patient safety. My query refers to the public hospital system in general. My question on the processing of personal data without consent is for the Data Protection Commissioner, Ms Dixon. It must be acknowledged that a state should be able to conduct detailed health analyses and research with the information...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Bernard Durkan: The first objective of the Bill is to support the development of better information systems, information capacity, data quality and the e-health agenda. To what extent do we compare with other jurisdictions under each of the aforementioned headings? What information has been requested from other jurisdictions in terms of how they have progressed in this area? Are we up to speed? Have we...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Bernard Durkan: This is an area we all have an interest in because in the course of our business as public representatives we generally come across issues pertaining to HIQA and data protection on a daily basis. On HIQA, I agree entirely with the two previous speakers with regard to the decongregation model. I do not agree with it in any situation. It seems to have taken on a life of its own and, like it...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

..., Mary Dunnion, who is director of regulation and chief inspector of social services, and Rachel Flynn, who is our director of health information. We are pleased to be here today with the Data Protection Commissioner to discuss the health information and patient safety Bill 2016. I will keep my statement short to allow as much time as possible for questions at the end. HIQA was...

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Vice Chairman: There has already been engagement with the Office of the Data Protection Commissioner. Why do the concerns still exist in spite of Mr. O'Connor's reference to extensive consultation?

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Ms Helen Dixon: Data protection does not delay it, although those who are required to conduct the necessary analysis may delay it.

Joint Oireachtas Committee on Health: General Scheme of the Health Information and Patient Safety Bill: Discussion (14 Dec 2016)

Bernard Durkan: ...that mechanism worked in practise in the past and, in Mr. Lennon's opinion, is it likely to work well in the future given the submissions made by HIQA and given our experiences with HIQA and the Data Protection Commissioner in the past, of which there have been many?