Results 1-2 of 2 for carers segment:8857335

Rare Diseases: Statements (6 Mar 2024)

Denis Naughten: ...accurate diagnosis is fraught with challenges. The lack of specific knowledge and expertise often leads to significant delays in receiving proper treatment, placing a heavy burden on families and carers. The anguish of being ill without diagnosis or witnessing a child suffering without recognition is profound. Thus, securing an accurate and swift diagnosis is of critical importance. ...

Rare Diseases: Statements (6 Mar 2024)

Stephen Donnelly: ...1 million people in our country either have a rare disease or are living with someone who has a rare disease. To all of those people - the one in 17 with the rare disease, their families, friends and carers - I say that our ambition is to ensure people with rare diseases have rapid access to the best possible healthcare. We are continuing to put in place and expand screening measures....