Results 1-20 of 44 for carers speaker:Tom Clonan

Seanad: An tOrd Gnó - Order of Business (23 Apr 2024)

Tom Clonan: ...our disabled citizens. We should not fail a talented artist who wants to have visibility as a disabled artist in this way. It is a most reprehensible series of incidents. As a father, a parent and a carer to a university student such as this one, to me, it beggars belief that we would treat a citizen in this way.

Joint Committee On Children, Equality, Disability, Integration And Youth: Ireland's International Obligations under the United Nations Convention on the Rights of the Child: Discussion (23 Apr 2024)

Tom Clonan: ...we are discussing here. I also welcome Dr. Niall Muldoon, whom I have never met, but I thank him for all his powerful advocacy in the area of disability rights for children. As a parent and a carer, I really appreciate it. I must confess that I was a primary school teacher in a previous life back in the 1980s. I had 37 children in the class-----

Joint Oireachtas Committee on Disability Matters: The United Nations Convention on the Rights of Persons with Disabilities at Local Level: Discussion (Resumed) (17 Apr 2024)

Tom Clonan: ...the stations are unmanned. That is something for which a more radical approach could perhaps be taken. I cannot leave without saying this. When I mentioned the negative experiences my son and his carer have had, I forgot to say that even though there is a certain cohort of people who seem to be a centre of gravity there, I have to say, they are very much the exception. All of the...

Joint Oireachtas Committee on Disability Matters: Role of Disabled Persons Organisations and Self Advocacy in Providing Equal Opportunities under the UN Convention on the Rights of Persons with Disabilities Implementation: Discussion (8 Apr 2024)

Tom Clonan: ...poor, benighted UK, our lovely neighbours, under a Tory Government, the citizens of England, Scotland, Wales and Northern Ireland enjoy considerably more rights than we do as disabled citizens and carers. We just need to straighten up and fly right. I thank Aprille, Gary, Ellen, Claire, Derek and Jean for their contributions, as well as everybody else who is here or was here earlier....

Seanad: An tOrd Gnó - Order of Business (21 Mar 2024)

Tom Clonan: Gabhaim buíochas leis an Chathaoirleach, leis an Cheannaire, le Seanadóirí agus na daoine uaisle. I welcome my guest, Lisa Domican. Lisa, like myself, is a parent. She is a full-time carer for her daughter Grace, who is 24 and has autism, ADD, epilepsy and PMDD. She also cares full time for her son Liam, who is 26. They are both beautiful young people. Liam has autism and...

Seanad: International Women's Day: Statements (6 Mar 2024)

Tom Clonan: ...been at all of the births of my five children and this was completely silent. My daughter would have been 21 this week. On Friday, I will go to the polls. I have a concern about the wording of the care amendment because it gives constitutional expression to the view that the family are primary carers for people with additional needs – disabled citizens like my son. The...

Joint Oireachtas Committee on Disability Matters: An Inclusive Education for an Inclusive Society: Discussion (28 Feb 2024)

Tom Clonan: ...come from? Does it come from the school contribution that parents are asked to make? Is this the responsibility for providing the supports for kids with additional needs again falling back onto parents and carers? Third, as a parent and a carer for an adult with special needs, I see that the damage that inviting section 39 organisations in to do what the State should be doing leads to...

Seanad: Nithe i dtosach suíonna - Commencement Matters: Hospital Waiting Lists (31 Jan 2024)

Tom Clonan: This is an absolute disgrace. If anybody looking on or listening to this ever doubted the contempt with which disabled citizens and carers are held in this country, here is the evidence. This is the proof of it.

Seanad: Family Carers: Motion [Private Members] (31 Jan 2024)

Tom Clonan: ..., including the optional protocol. Senator Seery Kearney asked what it is about Ireland and the attitude of people in the services towards our children. People in my community, both disabled people and carers, did not choose to be in this space. We are here by force of circumstance. However, the Ministers responsible have chosen to inhabit that space. Those people in the Health...

Seanad: An tOrd Gnó - Order of Business (24 Jan 2024)

Tom Clonan: ...I was delighted to be able to participate in the awareness workshop and the little certificate I received has pride of place on my wall. I learned an awful lot from it. We are a big community of carers, parents and disabled citizens but it is very interesting to have an opportunity to learn in the workplace. It is very much appreciated. I hope we can work together on other initiatives...

Seanad: An Bille um an Daicheadú Leasú ar an mBunreacht (Cúram), 2023: Céim an Choiste (Atógáil) agus na Céimeanna a bheidh Fágtha - Fortieth Amendment of the Constitution (Care) Bill 2023: Committee Stage (Resumed) and Remaining Stages (23 Jan 2024)

Tom Clonan: ...constitutional expression of a paternalistic and passive view of care as being exclusively the burden - and I use the word "burden" in inverted commas - of the family and for the majority of unpaid carers in this republic, who are women and girls. It is consistent with my direct, lived experience as a parent and a carer that the State and its agencies oftentimes have quite a hostile...

Seanad: An Bille um an Naoú Leasú is Tríocha ar an mBunreacht (An Teaghlach), 2023: An Dara Céim - Thirty-ninth Amendment of the Constitution (The Family) Bill 2023: Second Stage (22 Jan 2024)

Tom Clonan: ...19 of the UN Convention on the Rights of Persons with Disabilities. This wording falls pitifully short of that. I tell the Minister what it is. I have had a couple of inflection points in my life as a carer. I will give a couple of examples. One was when my son progressed from pediatric care to adult services. This was in 2019. I contacted the disability services manager in our CHO,...

Joint Oireachtas Committee on Disability Matters: Planning for Inclusive Communities: Discussion (Resumed) (17 Jan 2024)

Tom Clonan: ..., because this is about the national housing strategy for transition from congregated settings, a disabled citizen needs supports and a care package. As the witnesses are aware, there is a crisis in trying to get carers to carry out that work. Specifically on that, why does the HSE vary across CHOs? Some CHOs accept a brokerage model for the provision of carer hours. Some of them...

Joint Oireachtas Committee on Disability Matters: Rights-Based Care for People with Disabilities: Discussion (8 Nov 2023)

Tom Clonan: ...work for children with disabilities? Before I ask my final two questions, I have had some time to reflect on rights-based care for children with disabilities. To my mind and as a parent of and carer for a child - now an adult - with disabilities, there seem to be three principles obstacles to that, the first of which is resources. The second is a lack of a statutory basis for proper...

Joint Oireachtas Committee on Disability Matters: Ensuring Inclusive Local and EU Elections: Discussion (25 Oct 2023)

Tom Clonan: ...depend on the kindness of strangers, when really we should be at a starting point. I hear it in the aspirations set out for the commission that everything should be in place. There is this question of having a carer on Saturdays. Everybody should have a carer on Saturday and Sunday, because you might actually want to go to mass. Imagine that outdated notion. It comes back to the idea...

Seanad: Disability Allowance: Motion (11 Oct 2023)

Tom Clonan: ...at short notice the time for it was brought forward to 2.30 p.m. Many of the guests I invited, disabled persons, are unable to attend at this time because it is during the working day and when many of them have access to carers and personal assistants. They will not be able to come-----

Seanad: Disability Allowance: Motion (11 Oct 2023)

Tom Clonan: ...the disabled persons organisations are incandescent about what is contained in this document. I know because I am in contact with them every day. The United Nations Convention on the Rights of Persons with Disabilities mandates carers and parents to advocate on the part of their family members and children. I do not come in here as an interested party. I do not come in here as someone...

Joint Committee On Children, Equality, Disability, Integration And Youth: Autism Spectrum Disorder Bill 2017: Discussion (3 Oct 2023)

Tom Clonan: Are the witnesses in step with the aspirations of our community of disabled people and carers? Are they in step with this in terms of our aspirations or do they believe it is a bad idea for the State to be legally obliged? There are a couple of questions there. I look forward to the response.

Seanad: Disability (Miscellaneous Provisions) Bill 2023: Second Stage (11 Jul 2023)

Tom Clonan: ...what is like to have a disability in Ireland. Ireland is the worst country in the European Union in which to have a disability. May God help you if you have a disability or if you are a carer here. It should not be like that, and it does not have to be like that. We are the only country in the European Union, for shame, where there is no legal obligation on the State whatsoever to...