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Joint Oireachtas Committee on Health: Health Services for Persons with Lung Fibrosis: Discussion (24 Apr 2024)

.... We are here today to be the voice for lung fibrosis patients and their families and to highlight the inequities in the healthcare system. Gaining access to lung fibrosis care is a postcode lottery. If a person is lucky enough to be referred to a specialist centre, he or she will have specialist care and support that may improve life expectancy. If the person is not, however, then,...

Joint Oireachtas Committee on Health: Health Services for Persons with Lung Fibrosis: Discussion (24 Apr 2024)

Seán Crowe: ...to be doing is trying to chase this up and form-filling. That is taken as read right across the system. We get the officials in. There might be something in relation to that. On the postcode lottery aspect, this is an awful question to ask but where is the worst place to be and where are the better places to be as far as that is concerned? We had long Covid people before us last week....

Joint Oireachtas Committee on Health: Health Services for Persons with Lung Fibrosis: Discussion (24 Apr 2024)

Ms Maureen O'Donnell: On the postcode lottery, if people go to their GP and the GP does not know about lung fibrosis, which many of them would not, they may not be able to do the right tests. They may not know there is a specialist care centre out they could get referred to. As a result, that is where we are finding patients are ending up taking a long time to get diagnosed and have...