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Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Seán Crowe: I am conscious there are little ears in the audience. With regard to the disorder itself, Dr. Watson referred to the challenge if people do not have a specialist nurse to change the bandage. The last thing any parent wants to do is hurt their own child but that is what is happening. Will Dr. Watson explain what is involved?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Seán Crowe: The witnesses said there are approximately 300 people with the condition. Is that on the island of Ireland or just the South? Is there a similar organisation or does Debra operate across the island?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Seán Crowe: We are conscious that there is a specialist area for cancers, although that is a bigger proportion of the population. Would there be any benefit to having something like that? Let us say that a number of people are based in Dublin. Will the development of the national children’s hospital help? I am listening to what the witnesses are saying in regard to specialist nurses and the...

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Seán Crowe: With regard to specialist nurses, is there an advantage to getting the bandages changed at home, given people have an independent life or would it be beneficial to have it done centrally?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Seán Crowe: I am just trying to tease out what would be the best model. It does not make sense that people have to travel long distances. Again, to take the comparison of the cancer model, we were recently in Altnagelvin Area Hospital and we saw that people from Donegal can go there as the nearest specialist area. If there are clusters in a particular area-----

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Seán Crowe: Dr. Watson referred to the medical card and both the physical cost and the mental cost. I presume the financial cost ranges depending on whether the condition is more or less severe. Can the witnesses outline the rough financial cost of this?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Seán Crowe: I apologise for focusing on the financial element of this. Has Debra worked out how much it would cost the Exchequer to give everyone a medical card or a long-term payment?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Seán Crowe: As it is such a small sample, it would be quite small in the overall health budget but as the witnesses have explained, it would be significant for those families and individuals. I again give a commitment that we will try to follow up on many of these issues. I understand Deputy Lahart wishes to come in.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Seán Crowe: It is positive that Debra Ireland has praised the work of the HSE. It is always good to hear that things are working within the system. We hear a great deal of negativity about our health service. Given that so many people rely on it, that is really positive. We will try to follow up with the HSE on where the care pathway is at and ask some of the other questions in regard to the medical...

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Seán Crowe: -----he parking disc and all those issues. I was also struck by the idea of bandages being delivered in another jurisdiction. It will be useful to get a sense of how much that would cost the Exchequer. These are all issues that the committee can certainly follow up. If there is anything else the witnesses feel they missed this morning, they can treat this meeting as the start of a...

Mental Health (Amendment) Bill 2023: Second Stage (Resumed) [Private Members] (27 Feb 2024)

Seán Crowe: The Mental Health Commission's report into CAMHS highlighted several issues, including children lost to follow-up, lack of monitoring of psychiatric medicines, unacceptable waiting times for high-risk referrals and many more operational issues. When I chaired a meeting of the Joint Committee on Health in January, we heard that there were 4,400 children on the waiting list for their first...

Recent Arson Attacks: Statements (27 Feb 2024)

Seán Crowe: It has almost become a sick running joke at this stage that whenever a building is said to be earmarked for refugees or asylum seekers, the immediate response from some is, "I hope they have good fire insurance." There is a pattern to these arson attacks dating back nearly six years. They have only intensified in the last 12 months. More and more buildings are being burned. People are...

Written Answers — Department of Transport, Tourism and Sport: Driver Test (22 Feb 2024)

Seán Crowe: 110. To ask the Minister for Transport, Tourism and Sport if he will reassess the refusal to consider an additional driving test centre in south Dublin, given that the waiting list in Tallaght has passed 17,000 people and represents more than 10% of the State-wide waiting list; if he accepts that the previous, temporary measures have failed to stem the growth in the backlog, which has more...

Select Committee on Health: Health (Assisted Human Reproduction) Bill 2022: Committee Stage (Resumed) (21 Feb 2024)

Seán Crowe: Apologies have been received from Deputy Cathal Crowe. I believe Deputy Cullinane is on his way; he is doing an interview and said he would be a few minutes late. The committee has been convened to continue its consideration of the Committee Stage of Health (Assisted Human Reproduction) Bill 2022. Committee Stage consideration got off to a satisfactory start when we first discussed this...

Select Committee on Health: Health (Assisted Human Reproduction) Bill 2022: Committee Stage (Resumed) (21 Feb 2024)

Seán Crowe: I believe the Minister may want to bring in his officials.

Select Committee on Health: Health (Assisted Human Reproduction) Bill 2022: Committee Stage (Resumed) (21 Feb 2024)

Seán Crowe: Is that agreed by members? Agreed.

Select Committee on Health: Health (Assisted Human Reproduction) Bill 2022: Committee Stage (Resumed) (21 Feb 2024)

Seán Crowe: Does the Deputy wish to speak on the amendment?

Select Committee on Health: Health (Assisted Human Reproduction) Bill 2022: Committee Stage (Resumed) (21 Feb 2024)

Seán Crowe: Amendments Nos. 89; No. 1 to No. 89; Nos. 90 to 92, inclusive; No. 93; No. 1 to No. 93; No. 94; Nos. 1 to 3, inclusive, to No. 94; No. 95; No. 96; Nos. 1 to 4, inclusive, to No. 96; and No. 189 are related and may be discussed together. Is that agreed? Agreed.

Select Committee on Health: Health (Assisted Human Reproduction) Bill 2022: Committee Stage (Resumed) (21 Feb 2024)

Seán Crowe: The Deputy can but I will be taking them individually anyway.

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