Results 1-20 of 49 for carer's speaker:Tom Clonan

Joint Oireachtas Committee on Disability Matters: Aligning Disability Funding with the UNCRPD: Department of Children, Equality, Disability, Integration and Youth (18 Sep 2024)

Tom Clonan: ...of State has made and her absolute integrity in everything she does with regard to disability. I thank the Minister of State for all the support she gives to disabled citizens, the community of carers and people who are neuro-divergent. I also thank her for the support she has given me in respect of my legislative initiatives and so on. I was very struck when Deputy Harris was...

Joint Oireachtas Committee on Disability Matters: Rights-Based Approach to Day Services (Resumed): Discussion (19 Jun 2024)

Tom Clonan: ...a funding programme which is matched to this predicted forecast? How many facilities and accommodation centres are planned to be built in the next five years? For example, there are 170 ageing carers. I could be wrong but I imagine this somehow matches the 84 people who require urgent accommodation. This means accommodating a lot of people with ageing parents. I know from having lost...

Joint Oireachtas Committee on Disability Matters: Progressing Disability Services: Discussion (Resumed) (22 May 2024)

Tom Clonan: ..., and the Minister of State, Deputy Rabbitte, have launched this roadmap along with the funding that is involved. However, I still think it is a fundamentally flawed model. As a parent and a carer of a now adult, my son has received no meaningful therapeutic input since the financial crash, which is now 12 or 13 years ago. As part of his neuromuscular disease, he has scanning speech,...

Seanad: Disability (Miscellaneous Provisions) Bill 2023: Committee Stage (8 May 2024)

Tom Clonan: I thank the Minister of State for coming along this afternoon for this Bill. I welcome my guests from all over Ireland - proud disabled citizens, parents and carers, all of us advocates for the fundamental human rights of disabled citizens. On section 1 of the Bill, before I start, I wish to say this is a deceptively short Bill. It may appear to be a small step but it is not. This...

Seanad: Disability (Miscellaneous Provisions) Bill 2023: Committee Stage (8 May 2024)

Tom Clonan: ...human rights. That is consistent with the Government's campaign from last autumn and into the winter. Disability rights are human rights. I am mandated, under the UNCRPD, as a parent and carer, to speak to the rights and lived experience of disabled citizens. I am not just permitted to do this; I am actually mandated to do this by the UNCRPD. As parents, because we do not have the...

Joint Committee On Children, Equality, Disability, Integration And Youth: Ireland's International Obligations under the United Nations Convention on the Rights of the Child: Discussion (23 Apr 2024)

Tom Clonan: ...we are discussing here. I also welcome Dr. Niall Muldoon, whom I have never met, but I thank him for all his powerful advocacy in the area of disability rights for children. As a parent and a carer, I really appreciate it. I must confess that I was a primary school teacher in a previous life back in the 1980s. I had 37 children in the class-----

Seanad: An tOrd Gnó - Order of Business (23 Apr 2024)

Tom Clonan: ...our disabled citizens. We should not fail a talented artist who wants to have visibility as a disabled artist in this way. It is a most reprehensible series of incidents. As a father, a parent and a carer to a university student such as this one, to me, it beggars belief that we would treat a citizen in this way.

Joint Oireachtas Committee on Disability Matters: The United Nations Convention on the Rights of Persons with Disabilities at Local Level: Discussion (Resumed) (17 Apr 2024)

Tom Clonan: ...the stations are unmanned. That is something for which a more radical approach could perhaps be taken. I cannot leave without saying this. When I mentioned the negative experiences my son and his carer have had, I forgot to say that even though there is a certain cohort of people who seem to be a centre of gravity there, I have to say, they are very much the exception. All of the...

Joint Oireachtas Committee on Disability Matters: Role of Disabled Persons Organisations and Self Advocacy in Providing Equal Opportunities under the UN Convention on the Rights of Persons with Disabilities Implementation: Discussion (8 Apr 2024)

Tom Clonan: ...poor, benighted UK, our lovely neighbours, under a Tory Government, the citizens of England, Scotland, Wales and Northern Ireland enjoy considerably more rights than we do as disabled citizens and carers. We just need to straighten up and fly right. I thank Aprille, Gary, Ellen, Claire, Derek and Jean for their contributions, as well as everybody else who is here or was here earlier....

Seanad: An tOrd Gnó - Order of Business (21 Mar 2024)

Tom Clonan: Gabhaim buíochas leis an Chathaoirleach, leis an Cheannaire, le Seanadóirí agus na daoine uaisle. I welcome my guest, Lisa Domican. Lisa, like myself, is a parent. She is a full-time carer for her daughter Grace, who is 24 and has autism, ADD, epilepsy and PMDD. She also cares full time for her son Liam, who is 26. They are both beautiful young people. Liam has autism and...

Seanad: International Women's Day: Statements (6 Mar 2024)

Tom Clonan: ...been at all of the births of my five children and this was completely silent. My daughter would have been 21 this week. On Friday, I will go to the polls. I have a concern about the wording of the care amendment because it gives constitutional expression to the view that the family are primary carers for people with additional needs – disabled citizens like my son. The...

Joint Oireachtas Committee on Disability Matters: An Inclusive Education for an Inclusive Society: Discussion (28 Feb 2024)

Tom Clonan: ...come from? Does it come from the school contribution that parents are asked to make? Is this the responsibility for providing the supports for kids with additional needs again falling back onto parents and carers? Third, as a parent and a carer for an adult with special needs, I see that the damage that inviting section 39 organisations in to do what the State should be doing leads to...

Seanad: Nithe i dtosach suíonna - Commencement Matters: Hospital Waiting Lists (31 Jan 2024)

Tom Clonan: This is an absolute disgrace. If anybody looking on or listening to this ever doubted the contempt with which disabled citizens and carers are held in this country, here is the evidence. This is the proof of it.

Seanad: Family Carers: Motion [Private Members] (31 Jan 2024)

Tom Clonan: ..., including the optional protocol. Senator Seery Kearney asked what it is about Ireland and the attitude of people in the services towards our children. People in my community, both disabled people and carers, did not choose to be in this space. We are here by force of circumstance. However, the Ministers responsible have chosen to inhabit that space. Those people in the Health...

Seanad: An tOrd Gnó - Order of Business (24 Jan 2024)

Tom Clonan: ...I was delighted to be able to participate in the awareness workshop and the little certificate I received has pride of place on my wall. I learned an awful lot from it. We are a big community of carers, parents and disabled citizens but it is very interesting to have an opportunity to learn in the workplace. It is very much appreciated. I hope we can work together on other initiatives...

Seanad: An Bille um an Daicheadú Leasú ar an mBunreacht (Cúram), 2023: Céim an Choiste (Atógáil) agus na Céimeanna a bheidh Fágtha - Fortieth Amendment of the Constitution (Care) Bill 2023: Committee Stage (Resumed) and Remaining Stages (23 Jan 2024)

Tom Clonan: ...constitutional expression of a paternalistic and passive view of care as being exclusively the burden - and I use the word "burden" in inverted commas - of the family and for the majority of unpaid carers in this republic, who are women and girls. It is consistent with my direct, lived experience as a parent and a carer that the State and its agencies oftentimes have quite a hostile...

Seanad: An Bille um an Naoú Leasú is Tríocha ar an mBunreacht (An Teaghlach), 2023: An Dara Céim - Thirty-ninth Amendment of the Constitution (The Family) Bill 2023: Second Stage (22 Jan 2024)

Tom Clonan: ...19 of the UN Convention on the Rights of Persons with Disabilities. This wording falls pitifully short of that. I tell the Minister what it is. I have had a couple of inflection points in my life as a carer. I will give a couple of examples. One was when my son progressed from pediatric care to adult services. This was in 2019. I contacted the disability services manager in our CHO,...

Joint Oireachtas Committee on Disability Matters: Planning for Inclusive Communities: Discussion (Resumed) (17 Jan 2024)

Tom Clonan: ..., because this is about the national housing strategy for transition from congregated settings, a disabled citizen needs supports and a care package. As the witnesses are aware, there is a crisis in trying to get carers to carry out that work. Specifically on that, why does the HSE vary across CHOs? Some CHOs accept a brokerage model for the provision of carer hours. Some of them...

Joint Oireachtas Committee on Disability Matters: Rights-Based Care for People with Disabilities: Discussion (8 Nov 2023)

Tom Clonan: ...work for children with disabilities? Before I ask my final two questions, I have had some time to reflect on rights-based care for children with disabilities. To my mind and as a parent of and carer for a child - now an adult - with disabilities, there seem to be three principles obstacles to that, the first of which is resources. The second is a lack of a statutory basis for proper...