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Joint Committee On Children, Equality, Disability, Integration And Youth: Autism Spectrum Disorder Bill 2017: Discussion (3 Oct 2023)

Tom Clonan: I thank the witnesses for coming to the meeting. I also thank Nem for that very comprehensive piece of feedback. There have been some developments since this Bill was drafted initially. I know, from my contact with both of the Deputies, that notwithstanding some of the language contained within the draft, they are absolutely committed to doing what is in the best interests of the autistic...

Joint Committee On Children, Equality, Disability, Integration And Youth: Autism Spectrum Disorder Bill 2017: Discussion (3 Oct 2023)

Tom Clonan: With respect to disability, we have definitely noticed as a family that there has been a marked deterioration. I trace it back to the financial crash and the beginning of austerity measures. In the last ten years we have seen a gradual deterioration in services and supports in our experience of disability and so on. Is AsIAm experiencing a similar deterioration or are things improving?...

Joint Committee On Children, Equality, Disability, Integration And Youth: Autism Spectrum Disorder Bill 2017: Discussion (3 Oct 2023)

Tom Clonan: Are those resources forthcoming?

Joint Committee On Children, Equality, Disability, Integration And Youth: Autism Spectrum Disorder Bill 2017: Discussion (3 Oct 2023)

Tom Clonan: From my own research I know there is a different legislative framework in England, Scotland, Wales and Northern Ireland which mandates the state and its agencies to provide therapies, supports, care, care packages and personal assistants, PAs. We do not have that. That is the bit that is missing here. As Deputy Canney said, where we are trying to go with this is to create some sort of...

Joint Committee On Children, Equality, Disability, Integration And Youth: Autism Spectrum Disorder Bill 2017: Discussion (3 Oct 2023)

Tom Clonan: We have a witness who said that the State being legally obliged to do things was not a good idea because it exposed the State to some sort of legal redress. I am just asking, in the context of-----

Joint Oireachtas Committee on Foreign Affairs and Trade, and Defence: Current Issues Facing Members of the Defence Forces: Representative Association of Commissioned Officers (3 Oct 2023)

Tom Clonan: Unfortunately, I was at the Joint Committee on Children, Equality, Disability, Integration and Youth, but when I learned the witnesses were here today, I wanted to come in and express our gratitude and solidarity for what they did last week. It came at a very good time in that it showed all three services and their value to Irish society and our European partnerships. It also underscored...

Seanad: Address to Seanad Éireann by An Taoiseach (28 Sep 2023)

Tom Clonan: I thank the Taoiseach for coming in. I had the pleasure of meeting his lovely mum here two weeks ago, so I appreciate the importance of family. I am conscious that more than 100,000 disabled citizens and their families live in continuous poverty in Ireland. I refer to the time that is left in this Administration. Since I came in here, I have enjoyed very generous support from everybody in...

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: It was stated that the Boston team arrived on a Sunday at Dr. Goldman's invitation. How long did they stay in Ireland?

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: They arrived on Sunday. I doubt whether they visited the hospitals on the Sunday.

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: Okay, so they arrived on Sunday. Most transatlantic flights come in during the early afternoon.

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: Okay, so they came at the weekend and they were gone by Wednesday. I presume they flew out on Wednesday?

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: They were here for about 72 hours and they were accompanied by CHI.

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: Yes. During all of their visits and inspections, they were accompanied by somebody from CHI. Was it Dr. Goldman?

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: Okay, so Dr. Goldman accompanied them?

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: Did he accompany them to a meeting with the families, who gave a PowerPoint presentations on five of the case studies that were included in the review?

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: Which member of CHI attended that presentation?

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: Did Sharon Ryan attend that?

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: Okay, so is that the witnesses' understanding of an independent review? A group of people who come for 72 hours at CHI's invitation and are accompanied by people from CHI at all times? To me, it sounds like Professor Damian McCormack and Mr. Connor Green came in here and blew the whistle about their concerns, and then the witnesses invited the Boston group out and they did not cover many of...

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: I have not asked Dr. Goldman a question about them. As a layperson, let me give some context and then I will ask a question. My son had spinal surgery in Temple Street hospital in 2018. He was 18 years old. He should have had that surgery when he was around 12 but he did not because it is Ireland and he was on an extremely long waiting list. His curvature was so pronounced that it...

Joint Oireachtas Committee on Health: Spinal Surgery Issues at Children's University Hospital Temple Street: Children's Health Ireland (28 Sep 2023)

Tom Clonan: Do you still maintain that the Boston group was an independent group, that it was family-centred and an independent investigation or was the group accompanied at all times by senior people from CHI?

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