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Joint Oireachtas Committee on Health: Development of a National Hearing Care Plan: Chime (28 Feb 2024)

Neasa Hourigan: So, there will be information sharing between the private group and the public group?

Joint Oireachtas Committee on Health: Development of a National Hearing Care Plan: Chime (28 Feb 2024)

Neasa Hourigan: To be clear, is it envisaged that the HSE will, at the end of the year, carry out an audit on how many cases have been seen?

Joint Oireachtas Committee on Health: Development of a National Hearing Care Plan: Chime (28 Feb 2024)

Neasa Hourigan: It seems like a good way of pushing waiting lists down; however, when a private provider is introduced you also have to be very careful that you create good frameworks for good auditing and the good use of public money. Also, the principle of good fences making good neighbours should be in place. Who is on the working group and how much progress has it made? Budget 2025 was mentioned....

Joint Oireachtas Committee on Health: Development of a National Hearing Care Plan: Chime (28 Feb 2024)

Neasa Hourigan: Has the committee not been formed?

Joint Oireachtas Committee on Health: Development of a National Hearing Care Plan: Chime (28 Feb 2024)

Neasa Hourigan: So there are no terms of reference in the general-----

Joint Oireachtas Committee on Health: Development of a National Hearing Care Plan: Chime (28 Feb 2024)

Neasa Hourigan: When a working group is about to be formed, as in the following couple of weeks, the terms of reference will usually have been in the ether for people such as the delegates for several weeks. Are there no terms of reference right now? Have the delegates no information on whether private providers will be included or whether groups such as the Department of Social Protection will be...

Joint Oireachtas Committee on Health: Development of a National Hearing Care Plan: Chime (28 Feb 2024)

Neasa Hourigan: Therefore, there is no point in my asking about a timeline as we are far from that.

Joint Oireachtas Committee on Health: Development of a National Hearing Care Plan: Chime (28 Feb 2024)

Neasa Hourigan: However, if the working group is not yet set up, it would really have its work cut out for it if it were to get something together for budget 2025.

Joint Oireachtas Committee on Health: Development of a National Hearing Care Plan: Chime (28 Feb 2024)

Neasa Hourigan: I have a final question. While I am aware that Chime is not the HSE, knowing what the delegates know about the sector, are they aware of whether audiology departments in primary care are fully staffed or what staffing levels are like? If they are not fully staffed, is it contributing to waiting lists?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: I will stay on the community support side and some of the subsidiary supports. I thank the witnesses for their opening statement, but also the detailed report that was provided. It is great to see a report that focuses specifically on well-being as a result of a condition. We do not always get to look at it in a holistic way. Some of the issues I picked out relate to mental health and...

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: Debra has been unable to get funding for the research.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: I can understand that.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: Anecdotally, do the witnesses believe people are travelling long distances to come to Dublin, for example, from down the country for dentistry?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: A section of the report deals with physiotherapy. There has been reference to physiotherapy in the community. Is that home care or is it in a primary care setting?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: I presume that is a specialist requirement, given that it involves manipulating limbs and so on.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: Do primary care physiotherapists seeking to access training in EB go to Debra or can they access it through their own training?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: I know the witnesses do not run the primary care centres but, anecdotally, is there access to that kind of training regionally in communities?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: Training in EB specifically, yes.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: I ask the witnesses to expand on the issue of mental health supports. The significant burden in terms of mental health comes up throughout the report. The committee has previously discussed the specific needs of people with medical conditions and the types of support they require. Is that accessible? Is it being provided through primary care? Are people going to private providers? What...

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: Debra is funding-----

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