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Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: Is there a plan to assess Spinraza further?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: I think Professor Barry can appreciate that all of us have met with the families affected and that is why we are raising this.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: I will now turn to Mr. Judge's opening statement. We have had much debate around the Act, its suitability and what it covers. The committee is really focusing in on orphan drugs, and drugs for rare and ultra-rare diseases. Having had two previous meetings with this group, the committee recommended that the 2013 Act should be reviewed. That was a recommendation of this committee. In a...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: I want to put on record that I disagree with Mr. Judge's opening statement and the Minister quite clearly disagrees as well. He says there are no legislative barriers to the reimbursement of orphan drugs. I ask why then would the Minister make the statement he thinks the system is broken too? They are two directly opposing views from the same Department. Moving on to trying to get the...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: The HSE was engaged in a drive in respect of generic products. It had absolutely no difficulty with generics being prescribed.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: I am well aware of the position. I dispense products every month. I refer, for example, to Humira and Enbrel. I am aware of the biosimilars available at significantly less cost and I have yet to see a prescription for one.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: I do not want to be argumentative, but I am seeking solutions for specific families who have contacted me regarding specific drugs and it always comes down to cost. There are savings out there and we are not availing of them.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: I welcome that. I would love to see a budget for orphan drugs. I have asked, again on several occasions, for a specific breakdown and I keep getting the reply that there is nothing in the Act to differentiate orphan drugs from any other drug. That needs to be changed. That is why I have submitted a Bill to change the legislative position in order to allow for orphan drugs to be treated...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: On Orkambi, I must give credit where it is due. Vertex are now looking to have the HSE model replicated in other countries, including Sweden, because they regard it as a good model, which has been successful and delivered value for money. It has been agreed that down the line, iterations of Orkambi will become available. However, was that a result of the unending political pressure and the...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: That is 30%.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: There is 70% available.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: I will be brief as it has been a long session and I do not want or expect answers now. The witnesses may be able to respond in writing. As I said in my opening remarks, the committee stated that the 2013 Act needed to be reviewed. Clearly, the opening statement from the Department contravened that. I ask that the committee looks at that and furnishes a response. The Act still needs to be...

Written Answers — Department of Education and Skills: School Accommodation (21 Nov 2018)

John Brassil: 144. To ask the Minister for Education and Skills the status of an application by a school (details supplied) in respect of a request to purchase a site for the building of a new school; and if he will make a statement on the matter. [48619/18]

Ceisteanna ar Reachtaíocht a Gealladh - Questions on Promised Legislation (20 Nov 2018)

John Brassil: The programme for Government contains a commitment to improve the environment. I want to talk about a report in the IrishIndependenton a whale that was washed up in Asian waters. I argue that the contents of its stomach could be found inside any large sea animal washed up in Irish waters. They included 115 plastic cups, two flip-flops, 13 lbs of trash, four plastic bottles, 25 plastic bags...

Written Answers — Department of Health: Nursing Homes Support Scheme Applications (20 Nov 2018)

John Brassil: 465. To ask the Minister for Health if an application under the fair deal scheme will be expedited for a person (details supplied); and if he will make a statement on the matter. [48290/18]

Written Answers — Department of Children and Youth Affairs: Child and Family Agency Expenditure (20 Nov 2018)

John Brassil: 572. To ask the Minister for Children and Youth Affairs if an organisation (details supplied) will receive an increase in funding in view of the fact that its case load has increased significantly since 2012, which contrasts with a 16% reduction in state support from 2012 to 2018; and if she will make a statement on the matter. [48176/18]

Written Answers — Department of Health: Hospital Appointments Status (15 Nov 2018)

John Brassil: 108. To ask the Minister for Health the status of an appointment for a person (details supplied); and if he will make a statement on the matter. [47459/18]

Written Answers — Department of Health: Health Services Staff Remuneration (15 Nov 2018)

John Brassil: 129. To ask the Minister for Health if he will direct the HSE to extend the short timeframe for the return of forms by section 39 organisations in view of the fact that all information has already been provided for pay restoration; and if he will make a statement on the matter. [47526/18]

Ceisteanna ar Reachtaíocht a Gealladh - Questions on Promised Legislation (14 Nov 2018)

John Brassil: The programme for Government gives a significant commitment that all decisions and policies by the Government would be rural proofed. On 30 October this year the Department of Rural and Community Development wrote to every community service programme run by Pobal to inform them a review is to be carried out. Will the Taoiseach consult with his Minister to confirm this review is in line with...

An tOrd Gnó (Atógáil) - Order of Business (Resumed) (13 Nov 2018)

John Brassil: On the same issue, I raised prior to the budget the fact that 14,000 homes are currently vacant because their owners are in nursing homes availing of the fair deal scheme. The Minister of State at the Department of Health, Deputy Daly, gave an undertaking that he would review this with a view to trying to get some percentage of those properties into circulation to help deal with the housing...

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