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Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I move amendment No. 179: In page 23, between lines 9 and 10, to insert the following: “(6) Where the information is unavailable, the relevant body shall make every effort to locate the data controller holding the relevant person’s records.”.

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I move amendment No. 180: In page 23, between lines 9 and 10, to insert the following: “(6) When a relevant person applies under sections11and 12for information and/or when a relevant person applies for their personal data, the relevant body or the Authority will make available all medical records to the relevant person regardless of whether they have explicitly requested those...

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: It has been explained better by Deputy Bacik but that is what we sought to do with this amendment. The Bill currently uses the words "relevant to the health" of an affected person. In cases where you have a diagnosis of something, you understand what you are looking for, but many people will just want their or their family's medical history and will not know specifically what they are...

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I move amendment No. 181: In page 23, to delete lines 10 to 14.

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: Amendments Nos. 189 to 192, inclusive, are related and may be discussed together.

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I move amendment No. 189: In page 24, line 2, to delete “to which the application relates only”. This is similar to what we were discussing, so I do not wish to be repetitive. One of the key things in this regard, however, is what people might interpret as information "relevant to health". As Deputy Ward said, when I read this provision I see it as potentially restrictive....

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: All these amendments follow on in a similar vein. It is part of the difficulty when amendments are grouped and we are limited to just discussing those in the group. This group, though, is very much linked to the previous group, namely, amendments Nos. 182 to 188, inclusive. Regarding the proposed guidelines, because this topic has come up a good bit in recent meetings, I request that we...

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I move amendment No. 190: In page 24, line 2, to delete "to which the application relates only" and substitute "without delay".

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I move amendment No. 191: In page 24, to delete lines 3 to 5.

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I move amendment No. 192: In page 24, to delete lines 6 to 8.

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: Amendments Nos. 193 and 194 are related and will be discussed together.

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I move amendment No. 193: In page 24, between lines 15 and 16, to insert the following: "(6) The Minister shall issue guidelines to ensure that all medical information relating to a genetic relative is identified in the records held by the relevant body.". We are happy to take the two amendments as read because they are very similar to the previous ones, rather than going over the same...

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I propose to withdraw the amendment on the grounds that it may be resubmitted for Report Stage.

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I move amendment No. 194: In page 24, to delete lines 16 to 18.

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I move amendment No. 195: In page 24, line 20, after "conditions" to insert "and persons with expertise in reading archival documents". This seeks to strengthen our belief that any authorised data controller should have the expertise required to implement adoption legislation and policy and ensure adoption records are secured, maintained and interpreted correctly and held to the highest...

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I move amendment No. 196: In page 24, between lines 24 and 25, to insert the following: "(9) Where the medical information is unavailable, the relevant body shall make every effort to locate the data controller holding the relevant person’s records.".

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: Amendment No. 197 was ruled out of order in accordance with Standing Order 212(3) as it has the potential to impose a charge on the Revenue.

Select Committee on Children and Youth Affairs: Birth Information and Tracing Bill 2022: Committee Stage (Resumed) (9 Mar 2022)

Kathleen Funchion: I move amendment No. 198: In page 24, to delete lines 25 to 32.

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