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Written Answers — Department of Health: Narcolepsy Issues (4 Mar 2014)

Jerry Buttimer: 400. To ask the Minister for Health the investigations undertaken by his Department and statutory agencies into the connection between the onset of narcolepsy and the swine flu vaccination; and if he will make a statement on the matter. [10386/14]

Written Answers — Department of Health: Narcolepsy Issues (4 Mar 2014)

Jerry Buttimer: 401. To ask the Minister for Health the supports provided to persons who have been diagnosed with narcolepsy following receipt of the swine flu vaccination; and if he will make a statement on the matter. [10387/14]

Health Identifiers Bill 2013 [Seanad]: Second Stage (Resumed) (27 Feb 2014)

Jerry Buttimer: I welcome the opportunity to speak on the issue. The Bill represents a key step in the Government's reform programme and will allow us to introduce a system of unique identifiers for the individual and those who provide health care services. It will lead to an improvement in the quality of care, better access to information and more joined-up thinking. We all recognise the need to...

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: Before formulating a response the committee will reflect on the testimony given this morning. We must reflect on the issues that arose from the presentations and mobilise a proactive response from the Department and the HSE. All of that work will take place over the next couple of weeks. I thank all of the delegations for attending and also the people in the public Gallery. I wish to...

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: May I interrupt Ms Dempsey to alert Senator Burke to a vote in the Seanad.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: I thank Deputy Sandra McLellan. I will call Mr. Philip Watt to respond.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: Does Mr. McPhillips wish to make any further contribution?

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: I call Ms Lorraine Dempsey.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: Thank you, Deputy, for that last comment. I think you speak for us all. We do not necessarily understand, but we appreciate and we are genuine in our approach today, and we thank you, Mr. McPhillips, for being here. I know it has taken a Trojan effort to be here, and I want to thank you and your family. I now call on Senator Burke.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: Thank you and I thank all of you for your presentations. In particular, I thank Mr. McPhillips for his testimony this morning. I remind members that a photograph will be taken at the end of the meeting with our guests. Senator Burke will be attending the conference tomorrow in Belfast. I am unsure whether Deputy Ó Caoláin will attend but Senator Burke is going.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: Take your time.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: You are okay. If you want to take a break, we can come back to you after the questions and answers session.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: Thank you Mr. McPhillips. We will now move on to our final witness, Mr. Philip Watt, chairperson of the rare diseases task force and the Medical Research Charities Group, MRCG, and CEO of Cystic Fibrosis Ireland. He is welcome.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: I welcome Mr. Declan McPhillips, the chairperson of the Rett Syndrome Association of Ireland and CDKL 5 Association of Ireland.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: I ask Mr. McPhillips to speak slowly as this information is not contained in the briefing document supplied to the committee members.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: I call Ms Lorraine Dempsey, who is the chairperson of the Special Needs Parents Association. She is very welcome.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: I welcome Professor Eileen Treacy, consultant in metabolic diseases, National Centre for Inherited Metabolic Disorders, Childrens' University and Mater University Hospitals, National Clinical Lead and National Clinical Programme for Rare Diseases, HSE.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: I thank Ms Lawlor for her excellent presentation. I welcome Dr. Seán Ennis, the director of UCD's Academic Centre on Rare Diseases.

Joint Oireachtas Committee on Health and Children: Rare Diseases Day: Discussion (27 Feb 2014)

Jerry Buttimer: We are in public session. I remind members, witnesses and those in the Gallery of the need to switch off their mobile phones completely. This is because they interfere with the broadcasting and recording of proceedings. It is unfair to members of staff and those watching at home to be obliged to listen to interference on sound. I congratulate the European Parliament on the vote which...

Post Office Network: Motion (Resumed) [Private Members] (26 Feb 2014)

Jerry Buttimer: Order, please.

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