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Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Louise O'Reilly: Let us take Britain as an example. In England and Northern Ireland the drug is being reimbursed. Is that being done on a conditional basis or otherwise?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Louise O'Reilly: The families of the kids who are waiting to hear about the availability of this drug are very anxious and are watching these proceedings. They do not believe a mistake was made but, rather, a certain amount of compassion was shown. With regard to most of the countries where it is available or the countries the witness listed where it is not available in any form, conditional or otherwise,...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Louise O'Reilly: I suspect Professor Barry is playing with words because I think it is available to people via the public system but we can agree to differ on that.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Louise O'Reilly: As regards the Irish system, the witness knows the families are very anxious to know what will happen. There is a court case in progress and perhaps the witness will address that at a later stage.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Louise O'Reilly: I have something that specifically relates-----

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Louise O'Reilly: I understand that. This relates to a question I asked.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Louise O'Reilly: I wish to ask for clarification on that issue. Is anyone at the moment on a programme that for whatever reason has not received full endorsement where the HSE is administering the drug? The difficulty that arises for those people is who is going to administer the drug. Is anyone at the moment having the drug administered by the HSE even though it is not necessarily being fully refunded?...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Louise O'Reilly: No, I am asking about patients who are separate to that and whether there is a scenario in the HSE whereby people are on a drug but the HSE is not administering it so there is no protocol that exists other than the one for the management of people at the end of clinical trials.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Louise O'Reilly: The HSE would have no involvement in the administration of it? Is Mr. Flanagan certain of that?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Louise O'Reilly: I agree with the sentiments expressed. People have made huge amounts of money from this situation. I fully respect the role that the HSE plays in trying to get the best value for money. We have witnessed scenes where people protested at the gates of Leinster House. People have put pressure on us to put pressure on the HSE. The issue is cyclical, which is really unhelpful. I echo what...

Written Answers — Department of Health: Hospital Procedures (8 Nov 2017)

Louise O'Reilly: 155. To ask the Minister for Health when transvaginal mesh (details supplied) was first used by the HSE; and if he will make a statement on the matter. [47236/17]

Written Answers — Department of Health: Emergency Departments (8 Nov 2017)

Louise O'Reilly: 158. To ask the Minister for Health the status of a request by Letterkenny University Hospital to reopen its short-stay ward and 20 beds to alleviate the pressure on the accident and emergency department at the hospital; if the hospital's related request for additional staff to operate the ward will be addressed; and if he will make a statement on the matter. [47249/17]

Order of Business (7 Nov 2017)

Louise O'Reilly: I am sorry, but I asked a specific question about whether the Minister would meet the families.

Order of Business (7 Nov 2017)

Louise O'Reilly: It is not a supplementary. It was part of my original question.

Order of Business (7 Nov 2017)

Louise O'Reilly: I thank the Minister.

Order of Business (7 Nov 2017)

Louise O'Reilly: A Programme for a Partnership Government commits the Government to have full regard to any new evidence which emerges which is likely to definitively establish the cause of the fire at the Stardust. I understand from media reports that this matter was discussed this morning at Cabinet and that the report of retired judge Pat McCartan was considered. It is also my understanding that the...

Written Answers — Department of Education and Skills: Ministerial Meetings (7 Nov 2017)

Louise O'Reilly: 363. To ask the Minister for Education and Skills if he will meet an organisation (details supplied); and if he will make a statement on the matter. [46330/17]

Written Answers — Department of Justice and Equality: Property Registration (7 Nov 2017)

Louise O'Reilly: 469. To ask the Tánaiste and Minister for Justice and Equality if he will request the Land Registry to reply to a query lodged by a person (details supplied) and subsequently lodged by this Deputy; and if he will make a statement on the matter. [47020/17]

Written Answers — Department of Health: National Children's Hospital Expenditure (7 Nov 2017)

Louise O'Reilly: 662. To ask the Minister for Health the funding source of the €2 million estimated cost for the additional fire safety measures for the national children's hospital (details supplied); and if he will make a statement on the matter. [45832/17]

Written Answers — Department of Health: Hospital Staff Recruitment (7 Nov 2017)

Louise O'Reilly: 710. To ask the Minister for Health if the application for the second full-time and fully supported endocrinologist team at Letterkenny University Hospital has been approved by CAAC; and if these posts have been advertised. [46219/17]

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