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Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: To save time, because this is very statistics-orientated, I might supply a list and the witnesses might come back to me. Would that be okay?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: That is what I am asking about.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: I know that.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: That needs to be looked at.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: I am not leaving here until we get an answer to my last question. What Mr. Hennessy has just said is of no comfort. This is going to explode in everyone's face. The witnesses all know what I am talking about. One cannot discriminate between two people on the basis that one got cancer at one point and another got cancer a year later. There was a crisis in this country and the Government...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: I know the whole process. It takes a couple of years but all of that was skipped in this instance.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: I understand that and I agree that it will be across Europe. In terms of the women affected, it will work for some but not for others. I am not saying that this is a miracle drug in any way, shape or form but it seems to be helping Vicky Phelan, with whom I am in contact a lot. In other cases, it may not help but all of these women will do anything they can, regardless of whether they are...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: I thank Professor Barry for his honesty.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: I appreciate the Professor's honesty.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: That did not happen in this case.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: I am aware of that and Dr. Fennelly and Professor Crown have written about it. I understand that it can be done off-licence. The issue here is that it costs €8,500 every three weeks and the State is paying for it. I invite Mr. Judge to respond.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: I am interested in Mr. Judge's view on that specific point.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: Did that happen with Orkambi?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: The Minister intervened in the process by way of the clause to which Mr. Judge referred.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: The Minister can have a role here.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: In fairness to Mr. Judge, I know he is in a difficult situation as a representative of the Department but, in a roundabout way, that means that the Minister intervened in this scenario. As many of my colleagues have said, most notably Deputy Brassil, political pressure creates the conditions which allow the Minister to intervene. That is just reality. Professor Barry has been very open and...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: What is going to happen? How can we distinguish between two sets of women? There is a woman in Galway-----

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Alan Kelly: It is pretty clear that we have an issue here that must be addressed.

Ceisteanna ar Sonraíodh Uain Dóibh - Priority Questions: British-Irish Intergovernmental Conference (20 Nov 2018)

Alan Kelly: I ask the Tánaiste the key outcomes from the recent British-Irish Intergovernmental Conference and the prospects for the restoration of a power-sharing Executive in Northern Ireland as a consequence.

Ceisteanna ar Sonraíodh Uain Dóibh - Priority Questions: British-Irish Intergovernmental Conference (20 Nov 2018)

Alan Kelly: I thank the Tánaiste. The intergovernmental conference will probably have to be upgraded post Brexit as we will not have the same formal or informal meetings with our UK colleagues. Was there any discussion about this? Obviously that is something we will have to look into. What practical steps are going to be taken in relation to the 2014 Stormont House Agreement on legacy issues?...