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Joint Oireachtas Committee on Health: Rare Diseases: Discussion (Resumed) (22 Jun 2022)

Colm Burke: Would the witnesses accept that if we are trying to get a drug approved or we want to make it available, there has to be some connectivity between the medical people here and the medical people in those Benelux countries so that there is co-operation?

Joint Oireachtas Committee on Health: Rare Diseases: Discussion (Resumed) (22 Jun 2022)

Colm Burke: It is also about cross-border healthcare in the sense this is a small country and we will not necessarily have all of the expertise here. If we working on pricing with five other countries, could we also be working with them on the provision of expertise?

Joint Oireachtas Committee on Health: Rare Diseases: Discussion (Resumed) (22 Jun 2022)

Colm Burke: Going back to the genomics issue whereby there is one expert per 285,000 people in Northern Ireland, has there been engagement with Northern Ireland on sharing expertise so that expertise is available that might not otherwise be, and is there is a quid pro quofor Northern Ireland? has there been any engagement on working together with those in that area in Northern Ireland?

Joint Oireachtas Committee on Health: Rare Diseases: Discussion (Resumed) (22 Jun 2022)

Colm Burke: There is an advantage. For instance, we already have people coming from Northern Ireland to Dublin for particular medical treatments. Likewise, we have people from the South going to Northern Ireland for treatment. In this area, could there be more co-operation and, as a result, there would be a benefit for the entire island?

Joint Oireachtas Committee on Health: Rare Diseases: Discussion (Resumed) (22 Jun 2022)

Colm Burke: I am asking Mr. Woods if there is not a problem if someone has not been specifically designated to be in charge of the review of this national rare diseases plan. Is this then causing frustration within the HSE?

Joint Oireachtas Committee on Health: Rare Diseases: Discussion (Resumed) (22 Jun 2022)

Colm Burke: It might be helpful for the committee if we could get a breakdown of the number over the past five years – Mr. Woods referred to the approximately 29 new orphan drugs approved in 2021 – of new drugs that were brought into the equation in respect of reimbursement and the cost over that time. I understand there were negotiations with the pharmaceutical industry on reducing the...

Written Answers — Department of Culture, Heritage and the Gaeltacht: Tourism Policy (21 Jun 2022)

Colm Burke: 17. To ask the Minister for Culture, Heritage and the Gaeltacht the status of a successor to the Tourism Action Plan 2019-2021; and if she will make a statement on the matter. [32485/22]

Written Answers — Department of Culture, Heritage and the Gaeltacht: Artists' Remuneration (21 Jun 2022)

Colm Burke: 24. To ask the Minister for Culture, Heritage and the Gaeltacht if she will report on the basic income for the arts pilot scheme; the details of the operation of the scheme; the geographical spread of the pilot scheme in order that all counties will benefit; and if she will make a statement on the matter. [32484/22]

Written Answers — Department of Communications, Climate Action and Environment: National Broadband Plan (21 Jun 2022)

Colm Burke: 100. To ask the Minister for Communications, Climate Action and Environment if he will provide a progress report on the roll-out of the National Broadband Plan; the number of properties connected to 31 May 2022; the number of properties connected in Cork county, and the number of properties pending surveyed in Cork county; and if he will make a statement on the matter. [32541/22]

Written Answers — Department of Housing, Planning, and Local Government: Rental Sector (21 Jun 2022)

Colm Burke: 247. To ask the Minister for Housing, Planning, and Local Government the status of the compliance with the new requirement for landlords to register their tenancies with the Residential Tenancies Board annually; and if he will make a statement on the matter. [32884/22]

Written Answers — Department of Education and Skills: Disadvantaged Status (21 Jun 2022)

Colm Burke: 564. To ask the Minister for Education and Skills if consideration will be given by her Department to reclassifying a school (details supplied) as DEIS 1 from its current status as DEIS 2 due to the fact that it is an inner-city school and this status would be more appropriate given the demographics of the students attending the school; and if she will make a statement on the matter. [32279/22]

Written Answers — Department of Finance: Covid-19 Pandemic (16 Jun 2022)

Colm Burke: 19. To ask the Minister for Finance the current position pertaining to the Covid-19 related tax warehousing given the impact of rising costs on businesses; and if he will make a statement on the matter. [31254/22]

Written Answers — Department of Finance: Job Creation (16 Jun 2022)

Colm Burke: 191. To ask the Minister for Finance his views on the progress that has been made by Ireland at achieving full employment; and if he will make a statement on the matter. [24913/22]

Written Answers — Department of Education and Skills: Grant Payments (16 Jun 2022)

Colm Burke: 415. To ask the Minister for Education and Skills if consideration will be given by his Department to excluding the pandemic unemployment payments when calculating family income for the purposes of the SUSI grant; and if he will make a statement on the matter. [31468/22]

Written Answers — Department of Health: Departmental Strategies (15 Jun 2022)

Colm Burke: 189. To ask the Minister for Health the status of home support and homecare within the plans for Sláintecare; the timelines envisaged for the introduction of a statutory homecare scheme; and if he will make a statement on the matter. [31041/22]

Written Answers — Department of Health: Departmental Strategies (15 Jun 2022)

Colm Burke: 190. To ask the Minister for Health if an increased demand for homecare is foreseen as a result of the introduction of statutory homecare; if this has been included in the implementation plans for Sláintecare; the way these policies will be supported by any process carried out by the HSE to tender for the provision of services by provers; and if he will make a statement on the matter....

Written Answers — Department of Health: Medicinal Products (15 Jun 2022)

Colm Burke: 197. To ask the Minister for Health the work that his Department and the HSE are undertaking in order that 35 children with cystic fibrosis whose age and genotype were not included in the initial deal with the drug manufacturer will now be included to provide access to the life changing medication kaftrio; and if he will make a statement on the matter. [31066/22]

Written Answers — Department of Health: Healthcare Policy (15 Jun 2022)

Colm Burke: 203. To ask the Minister for Health the progress that has been made on the implementation of a national genetics and genomics medicine network as promised in the Programme for Government; and if he will make a statement on the matter. [31083/22]

Written Answers — Department of Health: Hospital Services (15 Jun 2022)

Colm Burke: 204. To ask the Minister for Health the way that his Department is supporting the medical genetics service in Our Lady’s Children’s Hospital, Crumlin as committed to in the Programme for Government; and if he will make a statement on the matter. [31084/22]

Written Answers — Department of Health: Hospital Services (15 Jun 2022)

Colm Burke: 205. To ask the Minister for Health if consideration will be given to locating a national genomics hub outside of Our Lady’s Children’s Hospital, Crumlin given that the current location is causing difficulties in treating adult patients who make up the majority of patients attending the clinic; and if he will make a statement on the matter. [31085/22]

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