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Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: I can understand that.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: Anecdotally, do the witnesses believe people are travelling long distances to come to Dublin, for example, from down the country for dentistry?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: A section of the report deals with physiotherapy. There has been reference to physiotherapy in the community. Is that home care or is it in a primary care setting?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: I presume that is a specialist requirement, given that it involves manipulating limbs and so on.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: Do primary care physiotherapists seeking to access training in EB go to Debra or can they access it through their own training?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: I know the witnesses do not run the primary care centres but, anecdotally, is there access to that kind of training regionally in communities?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: Training in EB specifically, yes.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: I ask the witnesses to expand on the issue of mental health supports. The significant burden in terms of mental health comes up throughout the report. The committee has previously discussed the specific needs of people with medical conditions and the types of support they require. Is that accessible? Is it being provided through primary care? Are people going to private providers? What...

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: Debra is funding-----

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: The HSE, through primary care, is not------

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: Is that similar across paediatric and adult services?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: We have started a discussion and we are all delighted to hear that work is being done in the US and there is research or treatment on the horizon. Dr. Watson stated that is a genetic-based treatment.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: I am out of time but to follow up on that point as it is in the realm of gene therapy, do sufferers currently get access to genetic counselling?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: Particularly for families who are making a decision around-----

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: I thank Dr. Watson.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Neasa Hourigan: Are there staff in primary care who have that training in place?

Written Answers — Department of Communications, Climate Action and Environment: Waste Management (27 Feb 2024)

Neasa Hourigan: 86. To ask the Minister for Communications, Climate Action and Environment if he will provide an update on the reinstitution of the price monitoring group to monitor the cost of residential waste collection to households; his plans to ensure price stability across the sector and prevent price gouging in areas that do not have the option of more than one service provider; and if he will make a...

Written Answers — Department of Finance: Climate Action Plan (27 Feb 2024)

Neasa Hourigan: 140. To ask the Minister for Finance the engagement his Department has had with Government colleagues regarding the Climate Action and Biodiversity (Mandates of Certain Organisations) Bill 2023; and if he will make a statement on the matter. [8730/24]

Written Answers — Department of Finance: Climate Action Plan (27 Feb 2024)

Neasa Hourigan: 163. To ask the Minister for Public Expenditure and Reform the engagement his Department has had with Government colleagues regarding the Climate Action and Biodiversity (Mandates of Certain Organisations) Bill 2023; and if he will make a statement on the matter. [8731/24]

Written Answers — Department of Culture, Heritage and the Gaeltacht: Legislative Measures (27 Feb 2024)

Neasa Hourigan: 256. To ask the Minister for Culture, Heritage and the Gaeltacht when she expects the register for short-term tourist letting to be in operation; and if she will make a statement on the matter. [9375/24]

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