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Joint Oireachtas Committee on Health: Health Services for Persons with Lung Fibrosis: Discussion (24 Apr 2024)

Frances Black: I have learned so much today and appreciate the delegation coming in. I want to ask Mr. MacAuley about the mental health piece and Mr. Hurley might say what that is like. I imagine that there is a lot of anxiety, regardless of whether one is the person with lung disease. For a family member, anxiety comes from worrying about the person with the lung disease. I ask Mr. Hurley to comment...

Joint Oireachtas Committee on Health: Health Services for Persons with Lung Fibrosis: Discussion (24 Apr 2024)

Frances Black: The briefing note contained an advanced nurse practitioner perspective from Lynn Fox. Ms Fox noted that some patients may have to bring four cylinders of oxygen with them when attending hospital appointments. Are hospitals not allowed to give those? Why do they have to bring the oxygen units with them? Do hospitals not provide oxygen?

Joint Oireachtas Committee on Health: Health Services for Persons with Lung Fibrosis: Discussion (24 Apr 2024)

Frances Black: Is there a reason it is not provided?

Joint Oireachtas Committee on Health: Health Services for Persons with Lung Fibrosis: Discussion (24 Apr 2024)

Frances Black: I thank the witnesses for the great work they are doing in this area and special thanks to Mr. Hurley and Mr. McAuley for sharing their stories. I am shocked to hear that a clinical care programme is not happening. That is really shocking. I agree with Deputies Cullinane and Hourigan that, as a committee, we need to follow up on why that is. The briefing document mentioned the HSE has...

Seanad: An tOrd Gnó - Order of Business (23 Apr 2024)

Frances Black: I appreciate what Senator Clonan said. He spoke with a heavy heart. I, too, speak with a heavy heart on Israel's genocidal war against the people of Gaza, which has now been going on for 200 days. Thirty-four thousand people have been killed and many more are missing. Today at Nasser hospital, Khan Younis, central Gaza, Palestinian Civil Defence workers are uncovering mass graves filled...

Joint Oireachtas Committee on the Implementation of the Good Friday Agreement: Women and Constitutional Change: Discussion (Resumed) (18 Apr 2024)

Frances Black: I have to start by thanking Dr. Mitchell for being here, for staying overnight, for getting childminders and all of that, for her very thoughtful engagement with the ongoing constitutional conversation and for sharing her experiences and knowledge with the committee. I absolutely acknowledge the wonderful book Dr. Mitchell has written and I think everybody should read it, in particular,...

Joint Oireachtas Committee on the Implementation of the Good Friday Agreement: Women and Constitutional Change: Discussion (Resumed) (18 Apr 2024)

Frances Black: Does Dr. Mitchell ever think of going into politics?

Joint Oireachtas Committee on Health: Delivery of Health Services for Patients with Long Covid: Discussion (17 Apr 2024)

Frances Black: I will keep it short. I commend our guests on the work they are doing and thank them for it. It is very important work. They have highlighted the dismissal, minimisation and gaslighting they have experienced, on top of long Covid itself. That must be horrific. I really acknowledge what they have said. I agree with Ms O'Donovan that it should not be treated as a psychological issue,...

Joint Oireachtas Committee on Health: Delivery of Health Services for Patients with Long Covid: Discussion (17 Apr 2024)

Frances Black: Have the witnesses spoken to the HSE about that and has there been any response?

Joint Oireachtas Committee on Health: Delivery of Health Services for Patients with Long Covid: Discussion (17 Apr 2024)

Frances Black: What was the response?

Joint Oireachtas Committee on Health: Delivery of Health Services for Patients with Long Covid: Discussion (17 Apr 2024)

Frances Black: I thank all the witnesses for being here. The witnesses mentioned that general paediatric consultants should be diagnosing and managing children with suspected long Covid. Parents who have connected with LCAI are saying that consultants do not really have the knowledge because they have not been trained. What should parents do when they feel that consultants are not really able to diagnose...

Joint Oireachtas Committee on Health: Delivery of Health Services for Patients with Long Covid: Discussion (17 Apr 2024)

Frances Black: Is there specific training for these consultants?

Joint Oireachtas Committee on Health: Delivery of Health Services for Patients with Long Covid: Discussion (17 Apr 2024)

Frances Black: In the HIQA report, the drawing up of clinical guidelines with PPI involvement was recommended. This has not been done yet. Do the witnesses know why?

Joint Oireachtas Committee on Health: Delivery of Health Services for Patients with Long Covid: Discussion (17 Apr 2024)

Frances Black: The drawing up of clinical guidelines with PPI involvement.

Joint Oireachtas Committee on Health: Delivery of Health Services for Patients with Long Covid: Discussion (17 Apr 2024)

Frances Black: We heard from LCAI that no data had been collected by long Covid clinics about why patients stop attending the clinics. It was mentioned this morning that the clinic was not busy enough. Is that because people have stopped attending? What is the reason behind that? How can we expect improvements in our understand of long Covid and service provision without this data? That needs to be...

Joint Oireachtas Committee on Health: Delivery of Health Services for Patients with Long Covid: Discussion (17 Apr 2024)

Frances Black: Listening to the people from LCAI this morning was powerful. There is nothing like listening to people who have lived through the experience in this area. You learn so much. How do the clinicians here envisage working with organisations such as LCAI, for example? Is that something they are considering into the future? It is so important when it comes to people who have experienced this,...

Joint Oireachtas Committee on Health: Delivery of Health Services for Patients with Long Covid: Discussion (17 Apr 2024)

Frances Black: With so many patients suffering neurological symptoms, why is there only one neurologist in the country - located in Dublin - for long Covid?

Joint Oireachtas Committee on Health: Delivery of Health Services for Patients with Long Covid: Discussion (17 Apr 2024)

Frances Black: When we consider that there are 350,000 people with long Covid and that there is one neurologist in Dublin, it is quite harrowing. I thank the witnesses.

Joint Oireachtas Committee on Finance, Public Expenditure and Reform, and Taoiseach: Illegal Israeli Settlements Divestment Bill 2023: Discussion (20 Mar 2024)

Frances Black: I thank Sadaka for all its help. I pay tribute to that organisation on the work it has done on the occupied territories Bill. I specifically thank Deputy Brady and Sinn Féin for introducing this brilliant legislation. It is very simple legislation. It is not rocket science. It could easily be passed if allowed. I thank the representatives of IPSC and Sadaka for appearing before the...

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