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Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: I move amendment No. 1: In page 6, line 16, to delete “Digital Health Record” and substitute “Electronic Health Record”. There are quite a number of amendments in this group. They are: amendments Nos. 1, 6 to 10, inclusive, 12, 14 to 17, inclusive, 19, 21 to 26, inclusive, 28, 29, 32 to 39, inclusive, 43, 45 to 49, inclusive, 52 to 54, inclusive, 68, 69 and...

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: It is to simply align the terminology in the Bill with the language used in the EHDS regulation. We are trying to establish a European-wide ability to share data in a consistent way. This simple terminological change will enable us to do that and to avoid purposely create legislation that is linguistically at odds with the rest of Europe.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: I will ask Mr. Tierney, who has been working throughout the period in question, to address that.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: That is the ultimate goal and what we are trying to get to. This is going to be a staged process over time. As we said, we started with the maternity hospitals, the children's hospital and the national rehabilitation hospital have this measure. This is about making this the complete system for all healthcare interactions. The whole purpose is to get to the point where a person’s...

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: I will start and ask Mr. Tierney to come in. It is very important, not only as we go through this procurement process but the many procurement processes I hope we will be in together over the next number of years, that we manage those processes from the perspective of maximising the advantage of the State, which is all of our shared interest. We will need to be careful on that. I ask Mr....

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: The intention is that it will be for all patients and GPs and not just GMS. The information we have is that it will be richer for GMS patients in the first instance. I ask Mr. O'Connor to comment on the legal piece and Mr. Tierney on the technical.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: That is not the intention. Given the scale of what is necessary from a data management perspective, cyber security perspective or integration perspective, we are looking at data providers. It would not be appropriate for the Department of Health or HSE, which are not IT companies but health service and policy delivery vehicles. That is not their function. I ask Mr. Tierney to elaborate on it.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: I will ask Mr. Tierney to begin and I might come in after that.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: It would. That is what we are ultimately getting to, but this has to be a transition. There is no other practical way of doing it. I very much hope we will be having this conversation in a number of years from now and that we are talking about a single system as other countries in Europe have. While not all have managed to do it, those that have managed to do it have begun this journey a...

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: I will ask Mr. Tierney to take that. However, we need to be aware we are in a live procurement process.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: It would require very significant capital expenditure. We are in a live procurement process. We do, of course, have a budget at present of about €190 million which is keeping things going at the moment, maintaining our cyber security, and Mr. Tierney can provide more detail on that. We are in a live procurement process and we are talking about very significant capital investment.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: It is for the whole thing, including the planning of it. To get to the ultimate electronic health record, the unified system, we are talking about very significant capital expenditure.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: Nevertheless we are in a procurement process now. We are making a business case at present and we are also in NDP discussions. This is a public session, of course. I am very aware that vendors might have an interest in it. We need to manage our conversation on finances carefully in the interest of the State.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: I would like Mr. Tierney to come in on the Deputy's earlier questions but I would also like Mr. O'Connor to give his perspective on the co-operation of the voluntary hospitals with, for example, the productivity dashboard. The purpose of Bill is to make sure there is no ambiguity regarding the sharing of information about the patient. That applies to all things. It is necessary that the...

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: I might ask Mr. O'Connor to speak about the productivity dashboard, which might be helpful.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: Does the Deputy mean resistance or reluctance on the part of individuals or hospitals?

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: We are very respectful of the personal rights of individuals and how their data is held and managed. There is a need to hold data electronically for the purposes of providing care, but there are certain guardrails put around who may access that data and on what basis. At the next level when we are looking at how we share and consider data on a more collective level, for health research for...

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: I might ask Mr. Tierney and Mr. O'Connor to come in on that.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: I might ask Mr. O'Connor to answer the earlier question.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

Jennifer Carroll MacNeill: To be clear, the guardrails are set out in section 12 of the Bill. It is important to say we are very respectful and concerned about individuals and their privacy. There are a couple of elements to that. One is that we need them to be in the electronic health system so they can get the quickest possible and the best, most integrated care. If you turn up to a hospital with a major trauma...

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