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An tOrd Gnó (Atógáil) - Order of Business (Resumed) (13 Nov 2018)

John Brassil: On the same issue, I raised prior to the budget the fact that 14,000 homes are currently vacant because their owners are in nursing homes availing of the fair deal scheme. The Minister of State at the Department of Health, Deputy Daly, gave an undertaking that he would review this with a view to trying to get some percentage of those properties into circulation to help deal with the housing...

Written Answers — Department of Jobs, Enterprise and Innovation: Intellectual Property Management (13 Nov 2018)

John Brassil: 301. To ask the Minister for Jobs, Enterprise and Innovation her views on proposed changes to Regulation (EC) No. 469/2009 to allow for a SPC manufacturing waiver; her views on this initiative; and if she will make a statement on the matter. [47188/18]

Written Answers — Department of Employment Affairs and Social Protection: Community Employment Schemes Data (13 Nov 2018)

John Brassil: 549. To ask the Minister for Employment Affairs and Social Protection the number of vacancies on employment schemes nationally in view of the reliance on these schemes to carry out essential work and repairs (details supplied); the steps she will take to address concerns of scheme providers that expect to face much greater difficulties in hiring participants for schemes due to a return to...

Ceisteanna ar Reachtaíocht a Gealladh - Questions on Promised Legislation (14 Nov 2018)

John Brassil: The programme for Government gives a significant commitment that all decisions and policies by the Government would be rural proofed. On 30 October this year the Department of Rural and Community Development wrote to every community service programme run by Pobal to inform them a review is to be carried out. Will the Taoiseach consult with his Minister to confirm this review is in line with...

Written Answers — Department of Health: Hospital Appointments Status (15 Nov 2018)

John Brassil: 108. To ask the Minister for Health the status of an appointment for a person (details supplied); and if he will make a statement on the matter. [47459/18]

Written Answers — Department of Health: Health Services Staff Remuneration (15 Nov 2018)

John Brassil: 129. To ask the Minister for Health if he will direct the HSE to extend the short timeframe for the return of forms by section 39 organisations in view of the fact that all information has already been provided for pay restoration; and if he will make a statement on the matter. [47526/18]

Ceisteanna ar Reachtaíocht a Gealladh - Questions on Promised Legislation (20 Nov 2018)

John Brassil: The programme for Government contains a commitment to improve the environment. I want to talk about a report in the IrishIndependenton a whale that was washed up in Asian waters. I argue that the contents of its stomach could be found inside any large sea animal washed up in Irish waters. They included 115 plastic cups, two flip-flops, 13 lbs of trash, four plastic bottles, 25 plastic bags...

Written Answers — Department of Health: Nursing Homes Support Scheme Applications (20 Nov 2018)

John Brassil: 465. To ask the Minister for Health if an application under the fair deal scheme will be expedited for a person (details supplied); and if he will make a statement on the matter. [48290/18]

Written Answers — Department of Children and Youth Affairs: Child and Family Agency Expenditure (20 Nov 2018)

John Brassil: 572. To ask the Minister for Children and Youth Affairs if an organisation (details supplied) will receive an increase in funding in view of the fact that its case load has increased significantly since 2012, which contrasts with a 16% reduction in state support from 2012 to 2018; and if she will make a statement on the matter. [48176/18]

Written Answers — Department of Education and Skills: School Accommodation (21 Nov 2018)

John Brassil: 144. To ask the Minister for Education and Skills the status of an application by a school (details supplied) in respect of a request to purchase a site for the building of a new school; and if he will make a statement on the matter. [48619/18]

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: When Mr. Shaun Flanagan came before the committee he was asked that question. His response was that the HSE has pushed the legislation as far as it can. He was basically saying that what is in place and what it is doing with it is the reason for the decisions it is making. As the witnesses know, I have tabled an amendment to the Bill, which I am trying to get to Second Stage; I will give a...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: I thank the witnesses for their presentation. I refer where we are as a country with regard to orphan drugs. The European Medicines Agency has designated 148 medicines as orphan drugs for rare diseases. Currently we reimburse 53 of those or 35%. The UK reimburses 68, Spain reimburses 75, Italy reimburses 84, France reimburses 116 and Germany reimburses 133. We are at 35%. Germany is...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: It can be done. Orkambi was not reimbursed because the NCPE suddenly saw the light, however. Massive political pressure and patient-centred demonstration and focus made officials realise they could no longer ignore it or make the decisions they were making without being challenged. When they were challenged, they made the decision. I do not know if I had any question there; it was more of...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: On the budget for orphan drugs, I have consistently sought a figure but cannot get it. Deputy Donnelly raised this earlier as well. Unless we have a specific budget it is difficult to make comparisons, decide how much we should spend or know how much of those savings will be reinvested in orphan drugs. That is something else we should insist on. Although I know they have the data, the...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: Who is on the review group that meets every month?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: I thank our guests for attending. I seek clarification from Professor Barry to begin. He referred to two specific drugs, namely, Kuvan and Spinraza. He said that following two recent meetings, he recommended to the HSE drug group that access to Kuvan be considered under a managed access programme, with a starting, stopping criteria which I am sure will delight the PKU society. The...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: Is there a plan to assess Spinraza further?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: I think Professor Barry can appreciate that all of us have met with the families affected and that is why we are raising this.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: I will now turn to Mr. Judge's opening statement. We have had much debate around the Act, its suitability and what it covers. The committee is really focusing in on orphan drugs, and drugs for rare and ultra-rare diseases. Having had two previous meetings with this group, the committee recommended that the 2013 Act should be reviewed. That was a recommendation of this committee. In a...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

John Brassil: I want to put on record that I disagree with Mr. Judge's opening statement and the Minister quite clearly disagrees as well. He says there are no legislative barriers to the reimbursement of orphan drugs. I ask why then would the Minister make the statement he thinks the system is broken too? They are two directly opposing views from the same Department. Moving on to trying to get the...

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