Results 1,281-1,300 of 4,002 for speaker:Rose Conway Walsh

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Rose Conway Walsh: I understand the sensitivities of it. The questions that I am asking are historical. I put it to the witness that there were no negotiations on the initial price that was given. There were no further negotiations with PTC around the initial price that Professor Barry quoted earlier.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Rose Conway Walsh: What form did they take?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Rose Conway Walsh: How many meetings?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Rose Conway Walsh: The HSE had one meeting, one price was quoted and that was it.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Rose Conway Walsh: They confirmed that was their final offer.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Rose Conway Walsh: That is very important.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Rose Conway Walsh: Surely part of the remit is to negotiate on that price and get that price as low as the HSE possibly can. I accept the expectation that the drug company would come in at a price that was fair and reasonable. However, if in the HSE's opinion it is not fair and reasonable, surely it would be then fair and reasonable to go back and inform the company that the price is unacceptable and ask it...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Rose Conway Walsh: I appreciate that. I do not have enough time to tease out all the data. Would the HSE be prepared to sit down with the drug company? It is unprecedented for a drug company to take legal action. God only knows how much it will end up costing in legal fees. I am sure it will be far in excess of what Translarna for two little boys would cost. Would the HSE be willing to sit down with PTC...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Rose Conway Walsh: If any company wanted to make further contact with the HSE even in this situation-----

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Rose Conway Walsh: Okay.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Rose Conway Walsh: What clinical evidence did the HSE take into consideration when assessing Translarna?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (8 Nov 2017)

Rose Conway Walsh: I really hope the HSE will sit down and reach agreement with the only drug company that provides this drug so that these two boys can be treated. That is all we are talking about.

Seanad: Commencement Matters: Water Services Funding (14 Nov 2017)

Rose Conway Walsh: I thank the Minister of State, Deputy John Paul Phelan, for coming into the House to update us on the Government's plans to provide equity and fairness for group water schemes. The lack of information on this issue has been frustrating for those in group water schemes. At a time when Irish Water is actively informing all those who are due refunds, there is little detail available regarding...

Seanad: Commencement Matters: Water Services Funding (14 Nov 2017)

Rose Conway Walsh: I thank the Minister of State for the update. I welcome the initiatives that are being taken in terms of the discussions that are ongoing and the formal group that will be set up. It is very important there is ongoing communication with the volunteers on the group water schemes so they know what is happening and that there is also a line of information to the local authorities so they are...

Seanad: Commencement Matters: Water Services Funding (14 Nov 2017)

Rose Conway Walsh: I thank the Minister of State.

Seanad: Order of Business (14 Nov 2017)

Rose Conway Walsh: Eligible students are being refused seats on school buses in rural areas. This applies particularly to students repeating their leaving certificate who do not know their exam results until after the deadline for the school transport application. I know people who have decided to repeat their leaving certificate, and well done to them, but who cannot get a seat on the bus. I do not know...

Seanad: The Diaspora: Statements (14 Nov 2017)

Rose Conway Walsh: I am speaking as a returned emigrant. This is a subject I am passionate about. I welcome the work the Minister of State is doing but I wish to point out that the work will be judged on the things the Minister of State puts in place. The Minister of State can only get away with talking about the subject for so long. We really need to see things put in place. It is not only me, my...

Seanad: Order of Business (15 Nov 2017)

Rose Conway Walsh: It is about the 700,000 on the waiting lists and the thousands of children who do not have a home.

Seanad: Order of Business (15 Nov 2017)

Rose Conway Walsh: That is obviously the communications unit.

Seanad: Order of Business (15 Nov 2017)

Rose Conway Walsh: We will have to get a communications unit.