Results 11,121-11,140 of 11,145 for speaker:Anne Rabbitte
- Joint Oireachtas Committee on Justice, Home Affairs and Migration: General Scheme of the International Protection Bill 2025: Discussion (14 Oct 2025)
Anne Rabbitte: I want to go back to the process that we have at the moment, the engagement we have with the Department and what best practices can be taken from the process, with the recommendations of the witnesses, to ensure we do not have detention. We need to focus on that part. Nobody wants detention. We also need to focus on what we do well and could be incorporated into the scheme of the Bill. I...
- Joint Oireachtas Committee on Justice, Home Affairs and Migration: General Scheme of the International Protection Bill 2025: Discussion (14 Oct 2025)
Anne Rabbitte: I thank the Chair for acknowledging that point. His comments are broadly political and as the Chair, he is supposed to be impartial. I apologise for interrupting, but I just have to say that. It has been happening all afternoon. I am just saying that.
- Joint Oireachtas Committee on Justice, Home Affairs and Migration: General Scheme of the International Protection Bill 2025: Discussion (14 Oct 2025)
Anne Rabbitte: I know, but are they not specifically to do with children or have I misunderstood?
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: I thank the Chair for facilitating a substitution. I am here on behalf of Senator Costello. She sent me a statement I want to read in and then I have a rake of questions. I would like to apologise for my absence today as this is an issue that is close to my heart. I would also like to thank the witnesses for coming before the committee today. As some of you may know I have been working...
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: Very few. That is okay. Senator Costello also wants to know what factors lead to it taking over 700 days on average for Irish patients to access orphan medicines approved by the EMA.
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: Perfect. I thank Professor Barry. As my colleague, Deputy Daly, said earlier, this is a very difficult subject and what we all want is a fair, timely system. I pay tribute to Rare Diseases Ireland and the "I am Number 17" campaign. I also acknowledge that extra funding has been got and Professor Barry's team has grown. This is not easy for anyone, but it is important that the team is...
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: All right. Does Professor Barry think the early access programme is a good idea for drugs? I am going to go further on early access, so what is his opinion on it?
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: I really welcome Professor Barry's answer on that. I want to go another step. If we do not change the way we are doing, it the assessment process for patients will continue to face delays in getting potentially life-changing treatments. Is it possible to establish an early access programme for rare disease treatments to allow patients with little or no options to avail of treatments early...
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: They are already in that whole process but they cannot get early access. The compassionate grounds were stopped. It is on that element I am asking the question. There are so few patients in the rare disease category that they cannot compete with cancer patients or heart and stroke patients. The drug I have mentioned pertains to two a year. You cannot compete. Other countries have...
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: Does Professor Barry agree on separate pathways, though?
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: Early access is one thing but it is the pathways that determine the access.
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: What about index linking the pricing? Currently, we do not do that. We have a set threshold. Did Professor Barry say that was €45,000?
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: Yes.
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: What would it take for the NCPE and HIQA to review the threshold and take similar action?
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: I was a little struck earlier by Professor Barry's over-and-back with Senator Clonan. The reason I was a little struck is that families play a huge role in this. They are the principal caregivers, and for decisions to be made without their having a role in the decision process is a little disingenuous. It goes back to the rare diseases technical review committee and families, but who...
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: And does Professor Barry support Pádraig O'Sullivan's Bill?
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: Yes, please.
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: So Professor Barry does not agree on having-----
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: He has said to me he agrees on assessments but he does not agree with me on-----
- Joint Oireachtas Committee on Health: Treatment of Rare Diseases: Discussion (15 Oct 2025)
Anne Rabbitte: Hear, hear.