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Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: If they go abroad, for instance, if they go to London, can they get the training?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: When will that pilot programme finish?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: If the State were to decide tomorrow to get its GPs trained in respect of Lyme disease, what would it need to do? What expertise does it need to bring in?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: Who trains them?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: I understand what Ms Lawless is saying there. We have limited time to ask questions. If we had a critical mass of GPs who had enough awareness and enough training on the subject of Lyme disease, perhaps we would get somewhere because there would be the pressure from the GPs as well, in terms of the new information.

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: We discussed treatment abroad to an extent. In a case where somebody must go abroad to get this treatment, can Ms Lawless take me through in a simple way what he or she would need to do?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: I am trying to get at the funding of it, particularly for those who cannot afford it.

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: If they do not have a clinician to sign off on it here for them to get whatever treatment or diagnosis abroad, they cannot get funded for it because they will not have a code.

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: This is what makes it scandalous because the treatment is obviously so simple and effective.

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: Once again, it is the case that those who do not have the money sit and be sick. I want to ask about the link with arthritis that Dr. Lambert mentioned. Is that proven because those figures are quite alarming? Did Dr. Lambert give a figure of 75%?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: I thank the witnesses.

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: I thank the witnesses for their presentations. I had to attend the Order of Business in the Seanad but I was present for the earlier discussion. The committee is trying to match what the witnesses are saying with what what we were told in the previous session and the people who come to us to say that they have Lyme disease and nowhere to go and it will cost them a significant amount of...

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: How many people are tested per year for Lyme disease?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: How many people go to their GP with suspected Lyme disease and are tested for the disease?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: How many of those were subsequently diagnosed with the disease?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: That does not match up with the previous information we were given. The 1991 study of the blood bank in Dublin showed 9.75% of blood donors tested positive for the Lyme antibody. How does Dr. De Gascun explain that?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: Dr. De Gascun would dismiss the findings of the 1991 study.

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: Might the number with Lyme disease be higher than suspected?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: It does not explain it. I am unsure what the sample size was in the 1991 study but, considering that a rate of 9.75% was identified among a random sample of blood donors, could one extrapolate that, given a population of 4 million, many people may have Lyme disease and be unaware of it?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: Yes.

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