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Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Rose Conway Walsh: We need to get it right all the time because it was not the case with of Translarna.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Rose Conway Walsh: A total of 22 countries have approved that drug.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Rose Conway Walsh: With regard to the impact of delays in the BeNeLuxA countries, we know the situation regarding Spinraza in all of the BeNeLuxA countries. Surely we can use that as a lever. The children are being admitted to ICU. Even taking out the inhumane aspect and the distress caused, the additional costs are building up in trying to-----

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Rose Conway Walsh: It is a shame that the clinicians are not involved in the decision-making. We are lucky, in a country of this size, that we have well qualified clinicians, yet their opinions are just dismissed. There is protectionism within the system that certainly does not serve either the clinicians or the families and those who need the solutions and treatment.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Rose Conway Walsh: The Minister needs to challenge it.

Seanad: Commencement Matters (Resumed): Special Educational Needs Service Provision (27 Nov 2018)

Rose Conway Walsh: I thank the Minister for coming to the House. The reason I asked him here today is to highlight the need for an autism spectrum disorder, ASD, unit in Castlebar. Castlebar is the county town of Mayo and it is increasingly an issue that children with autism do not have a place to go in the county. While we have St. Patrick's national school and I commend the other ASD units in County Mayo...

Seanad: Commencement Matters (Resumed): Special Educational Needs Service Provision (27 Nov 2018)

Rose Conway Walsh: I am pleased that the Minister's officials will meet the HSE early intervention team in County Mayo. It is not right that so many children and parents are being left behind. Many parents are enduring significant anxiety because they cannot get basic education for their children. I ask the Minister to meet those parents and listen to them. The voices of parents are often lost in all of...

Seanad: Order of Business (27 Nov 2018)

Rose Conway Walsh: As we are beginning the 16 days of action opposing violence against women, I remember the 225 women who have died violently in this State since 1996. I also remember all of the other women and children who have been impacted by domestic violence and sexual violence. The theme of this year's 16 days of action is femicide, believing the survivors and challenging the myths. As well as...

Seanad: Finance Bill 2018: Second Stage (27 Nov 2018)

Rose Conway Walsh: I thank the Minister for coming to the House to present the Finance Bill. While I am reluctant to disturb the Mills and Boon like love-in that has been going on in the House since this session started, there are some issues of which we must be mindful. The first of these is the fact that we have 10,000 people who are homeless and approximately 1 million people on waiting lists. We need to...

Joint Oireachtas Committee on Agriculture, Food and the Marine: Areas of Natural Constraint: Department of Agriculture, Food and the Marine (27 Nov 2018)

Rose Conway Walsh: Some of my questions are predicated on what the answers might be to some of the questions that have already been asked. Is the mountain grazing area retained? Also, have the two lowland designations - the more severely impacted and the less severely impacted - been retained? Reference was made to what the Department is directed to do by the EU. What are the Department's areas of...

Joint Oireachtas Committee on Agriculture, Food and the Marine: Areas of Natural Constraint: Department of Agriculture, Food and the Marine (27 Nov 2018)

Rose Conway Walsh: Has the status of the islands been resolved? I ask particularly regarding one within a mile of my home, Barna Island, where the landowners have waited for three years to establish whether they meet the criteria. Is there a specific person in the Department to deal with the islands' status?

Seanad: Order of Business (28 Nov 2018)

Rose Conway Walsh: I welcome Mrs. Ardagh to the Visitors Gallery. I hope she will have a nice day. On behalf of the Sinn Féin team in the Seanad, I congratulate Senator Ruane on her wonderful achievement. Most of all, I wish to discuss broadband provision. The Cathaoirleach referred to meeting a French delegation. I hope he congratulated the delegates on the fact that a French billionaire owned our...

Seanad: Order of Business (28 Nov 2018)

Rose Conway Walsh: -----but he never mentions the thousands of jobs that have been denied to people living in rural Ireland or the thousands who have been forced to emigrate because this infrastructure has not been provided. Shame on all of your houses. We want to know when we will have broadband in rural Ireland. We deserve to have it as much as anyone else. We are sick and tired of the semantics,...

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: I thank all of the witnesses for their presentations. I am particularly interested in Dr. Lambert and his expertise. I thank him very much for all of the information he has given. My most recent contact with Lyme disease was when I saw a woman packing bags in SuperValu a couple of weeks ago in Castlebar. She explained she was doing it to raise money for her daughter who was chronically...

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: Is that centre closed now?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: My information is that there is no doctor there now, although I stand to be corrected on that. If a person watching proceedings today is experiencing symptoms that point to Lyme disease, what should he or she do? Say this person is living in the west of Ireland without the means to go anywhere privately. What does that person do?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: Can the GP do a clinical diagnosis to tell people if they have Lyme disease?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: Can patients be treated by their general practitioner if the GP makes that clinical diagnosis?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: I want to get back to the GPs and the GP training. At this stage, how many GPs in Ireland are trained on Lyme disease? How long does the training take? What form does it take?

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Rose Conway Walsh: Dr. Lambert states there is one in London. If a GP decides today that this might be something that is affecting a number of his or patients and wants to get trained in it, where does the GP go to get the training?

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