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Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: With regard to the rare disease technology review group, are there terms of reference for the group that can be sent to the committee?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: It is a review group. Does it make decisions or does it just review decisions?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: It goes to the drugs group.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: The representatives who appeared before the committee this morning spoke about the patients' representatives on that committee. They felt they were hand-picked rather than elected. What is the process of choosing the patient representative?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: Ms McGrath may not speak.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: They were chosen by invitation.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: How is the representative chosen from among those who respond?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: I thank Deputy Durkan for his patience.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: The Deputy might be straying off topic.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: I thank the Deputy.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: Is Mr. Hennessy saying that the 2013 legislation would have to be amended to allow for collective bargaining?

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: That is what Mr. Hennessy is suggesting.

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: As a matter of clarification, recommendation No. 2 of the committee last year did not recommend a review of the entire Act. It recommended a review of the Act to identify potential legislative barriers to the reimbursement of orphan drugs and corresponding legislative amendments. It was not asking for an entire review of the Act. It honed in specifically on that aspect. Mr. Judge seemed...

Joint Oireachtas Committee on Health: Evaluating Orphan Drugs: Discussion (Resumed) (21 Nov 2018)

Michael Harty: That concludes our business. I thank Professor Michael Barry, Mr. John Hennessy, Mr. Shaun Flanagan and Mr. Finian Judge for spending so much time with us this morning.

Written Answers — Department of Public Expenditure and Reform: Flood Relief Schemes (27 Nov 2018)

Michael Harty: 208. To ask the Minister for Public Expenditure and Reform the status of the long promised Clonlara flood relief scheme following the decision of Clare County Council to withdraw its plans as a result of submissions from the National Parks and Wildlife Service and an environmentalist; the implications the delay has for the commencement and completion of this urgent scheme; and if he will make...

Ceisteanna ó Cheannairí - Leaders' Questions (28 Nov 2018)

Michael Harty: The closure of the rural post office network is happening across the country, with perhaps the single exception of Dublin. A Programme for a Partnership Government refers to: supporting the post office network and expanding and developing services delivered through post offices; expanding social welfare contracts; the provision of Government services through the network; the development of...

Ceisteanna ó Cheannairí - Leaders' Questions (28 Nov 2018)

Michael Harty: The viability of rural post office is under threat but that is because of Government inaction. A Programme for Partnership Government outlines a process which would expand services in rural post offices. Of course, rural Ireland is changing and people are moving to online services, but the post office is much more than online services and facilitating social welfare payments. The...

Health (Regulation of Termination of Pregnancy) Bill 2018: Report Stage (Resumed) (28 Nov 2018)

Michael Harty: This three-day rule presents practical difficulties to the women, which have been outlined by other Deputies, but it also presents practical difficulties for the doctor. When we had a hearing on guidelines in September, the experts who gave evidence could not present any international evidence on why there should be a three-day waiting period. When the Minister is responding, he might...

Written Answers — Department of Health: Departmental Correspondence (28 Nov 2018)

Michael Harty: 189. To ask the Minister for Health his plans to appoint an independent expert to examine claims contained in new documentation given to him regarding missing blood samples that were taken for an investigation (details supplied); if the independent expert will also advise if a public inquiry is warranted; and if he will make a statement on the matter. [49617/18]

Joint Oireachtas Committee on Health: Lyme Disease: Discussion (28 Nov 2018)

Michael Harty: The purpose of this morning's meeting is to consider the subject of Lyme disease. We will hold two sessions on this topic. The first session will be with Tick Talk Ireland, the support group set up to encourage awareness, prevention and treatment of Lyme disease. They will be joined by Dr. Jack Lambert, a consultant in infectious diseases at the Mater Hospital. In the second session we...

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