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Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Róisín Shortall: Okay. That is very hopeful for the future. Will the witnesses explain how the system of supports operates at the moment? Is it a question of people qualifying on income grounds for a medical card or not? Are there other supports given the nature of the condition?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Róisín Shortall: Are those dressings and the treatment on prescription?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Róisín Shortall: That seems like a fairly straightforward decision that could be taken that would be a huge help to people.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Róisín Shortall: Ms Callis referred to severe and simplex cases and I do not think there is anything simple about the simplex cases.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Róisín Shortall: What is the split within that cohort of 300?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Róisín Shortall: Okay. Will the witnesses talk about the role of pain relief and the support available for it.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Róisín Shortall: I take it all those are either available on the medical card or drug payment scheme.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Róisín Shortall: Moving to the specialist nurses and the dressings, clearly it is a very challenging and difficult role. Is it essential that service is provided by nurses?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Róisín Shortall: It is shocking that Debra has to provide so much financial support to people. Given the nature of the condition, it is shocking that the support is not available from the State. Has Debra met the Minister recently regarding its budget asks? How is Debra funded?

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Róisín Shortall: That is good to hear. I ask Dr. Watson to address the issue of community services.

Joint Oireachtas Committee on Health: Health Services for People with Epidermolysis Bullosa: Discussion (28 Feb 2024)

Róisín Shortall: I thank Dr. Watson.

Rare Diseases: Statements (6 Mar 2024)

Róisín Shortall: Last week, along with other Members of the House, including Deputy Naughten, I had the pleasure of attending the "I Am Number 17" exhibition launch in St. Stephen's Green. The exhibition features 17 people living with rare diseases, reflecting the fact that one in 17 people will be affected by a rare disease at some point in their lives. Putting their stories on display in the heart of our...

Written Answers — Department of Education and Skills: Special Educational Needs (5 Mar 2024)

Róisín Shortall: 283. To ask the Minister for Education and Skills if her attention has been drawn to the case of a child (details supplied) attending an early intervention preschool in Dublin 11; what supports can be offered to the child's family as they continue to search for a suitable school place for their child; what steps her Department is taking to ensure that children with additional needs can secure...

Written Answers — Department of Health: Home Care Packages (5 Mar 2024)

Róisín Shortall: 608. To ask the Minister for Health the number of persons on a waiting list for homecare packages, by CHO and LHO, in tabular form; and the number of persons experiencing delayed discharge from hospital due to a delay in accessing homecare. [10759/24]

Written Answers — Department of Health: Hospital Services (5 Mar 2024)

Róisín Shortall: 716. To ask the Minister for Health to respond to a media report (details supplied); if he intends to meet with residents and their families; and if he will make a statement on the matter. [10334/24]

Written Answers — Department of Health: Hospital Services (5 Mar 2024)

Róisín Shortall: 774. To ask the Minister for Health the current number of persons experiencing delayed discharge from hospital, by hospital, in tabular form. [10760/24]

Written Answers — Department of Health: Hospital Services (5 Mar 2024)

Róisín Shortall: 775. To ask the Minister for Health the total number of delayed discharges in 2023, by month, in tabular form. [10761/24]

Written Answers — Department of Health: Departmental Funding (6 Mar 2024)

Róisín Shortall: 213. To ask the Minister for Health to respond to matters raised in correspondence (details supplied); the reason funding was withdrawn; and if he will make a statement on the matter. [11005/24]

Written Answers — Department of Health: Assisted Human Reproduction (6 Mar 2024)

Róisín Shortall: 214. To ask the Minister for Health the current waiting times for people to access the regional fertility hubs; if he will outline the average waiting time for each regional fertility hub for each step along the process; and if he will make a statement on the matter. [11006/24]

Written Answers — Department of Health: Mental Health Services (6 Mar 2024)

Róisín Shortall: 215. To ask the Minister for Health the plans to introduce a new complaints process for CAMHS in view of concerns with the current procedure (details supplied); if this will be provided for in the new Mental Health (Amendment) Bill 2023; and if he will make a statement on the matter. [11007/24]

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