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Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: Arising from our meeting this morning we will communicate on the different issues and we will revert back to the witnesses when we get the reply back from them.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: If there is a need for a further meeting - even if it is at a sub-committee level - we will consider that.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: The select committee will meet on Tuesday at 6 p.m. The joint committee will meet again next Thursday at 9.30 a.m.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: Hopefully, the community teams will help to change that.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: That it is important but it is also important that the organisation also communicates with the Department about that. We can discuss that afterwards.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: As opposed to a service level agreement.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: Is the funding primarily provided by the HSE or is it part funded by SBHI?

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: Has the HSE intimated what it intends to do in this area?

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: Who did Mr. Kennedy meet?

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: The organisation was promised that the post would be filled in 2009.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: The committee issued a press release on our hearings. I commend Mr. Maher on his efforts.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: How many people in the country suffer from the syndrome? The witnesses suggested a figure of 1.4 million people worldwide.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: Has the group made a submission to the Department on that?

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: It has not written formally to the Department of Social Protection or engaged with the HSE or Department of Health.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: Yes.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: There is a Bill being prepared regarding that. We will make a recommendation from today's meeting, if members agree, that we would ask that it would be considered that this condition be put on the long-term illness list. Is that agreed? Agreed.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: We will take the other two speakers now, Senator Landy and Deputy Deering.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: I encourage Ms Ann Mooney and Ms Jude Bromley to participate in the replies if they wish. We will begin with Mr. Maher who can choreograph the answers.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: In that regard, I commend Mr. Maher on his courage and bravery in doing that and hope that he will be a catalyst for other men to come forward and to be active participants in the group.

Joint Oireachtas Committee on Health and Children: Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland (6 Dec 2012)

Jerry Buttimer: Told by whom?

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