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Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: Why did CHI not refer it to An Garda Síochána?

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: One second, please. It is CHI's view that they did not meet the threshold. Since Ms Killeen White referred it to An Garda Síochána, did she get any correspondence or any view from CHI, even now, with regard to whether it felt it appropriate that it was referred to An Garda Síochána?

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: I did not ask that. I asked that since Ms Killeen White referred the report to An Garda Síochána, has she had any communication or view from CHI as to whether or not, even now, it should have been referred?

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: That is since it was referred.

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: I find that extraordinary. The HSE was informed by CHI about this unpublished report at a meeting in March 2022. That is what CHI says. Is that correct?

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: There is no reference whatsoever, so when CHI says that it informed the HSE of that report, is that accurate?

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: I cannot accept that there is any cultural shift within CHI. There is a culture of secrecy. What was in this unpublished report referred to a silo mentality and a toxic culture within the organisation. Despite Ms Nugent's best efforts, she has a lot of work to do. I want to get to some of the issues in this unpublished report. I have spoken to the head of the HSE and I know that it...

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: It was not accepted. It was certainly not published. The important part is whether or not children were notified. I will read from an extract of that report, which was in the public domain and details of which were published in a Sunday newspaper. It states: Evidence from the gathered patient information shows that patients in both Temple Street and Crumlin have been neglected and have...

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: As of now, have families been notified of any concerns raised with regard to what was described as suboptimal care given to their children?

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: Yes, and the unpublished report, which also cites issues. We have two reports that cite issues relating to these orphan children. I know that the advocate groups and parents, some of whom are in the Public Gallery, have sought that report and have not got it. They feel they have been stonewalled. They feel they are meeting a wall of resistance. This is what they are talking about when...

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: It is yes or no. Were the families notified?

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: Not to Ms Nugent's knowledge. Exactly.

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: No, sorry. With respect, it is a failure that families were not notified. I will move on to another section that is troubling for me, because there are patient safety issues. There is a procedure called orchidopexy. Does Ms Nugent know what that is?

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: Exactly. This unpublished report, which again was in the public domain in part because of concerns about delayed waiting lists, in the context of one subset of these patients states: Despite an existing alternative option being available for quicker treatment, patients with undescended testes who require this procedure are waiting far in excess of the recommended timeframe for treatment...

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: What does make sense to me, if I can be clear and blunt, is that Ms Nugent is talking about information that has not yet been disclosed to the patients. When I see there were patients with undescended testes who were waiting far in excess of the recommended timeframe for treatment and that they were placed at real and known risk for fertility issues or cancer, that jumps out at me. Again, I...

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: I will ask my question again. Because of the limited time available, I am asking a direct question. Were the parents of those children contacted with regard to those concerns?

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: Again, they were not contacted. I just find all of this incredible. Concerns were also raised about oncology. Is it also true to say there was a CHI risk assessment completed on 27 August 2021 in respect of the oncology unit? Is that not correct? It scored a risk of 20 out of 25, which is high. The assessment states, "because it was a high red risk they cannot be accepted and require...

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: I find all of this absolutely and profoundly shocking. CHI can say what it wants regarding how this report came about. It is shocking that the report has not been published. It is shocking, and not only in the context of this issue, because you cannot look at it in isolation. You have to look at all the children who had surgeries carried out unnecessarily. There are children, some of them...

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: Perhaps the clinical director will answer briefly. Regarding the multidisciplinary team reviews of kids with osteotomies, I think that 72 have been seen so far. How many need to be seen and how long will that take?

Joint Oireachtas Committee on Health: Treatment of Children with Dysplasia and Scoliosis and Related Matters: Discussion (19 Jun 2025)

David Cullinane: How long will that take?

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