As a person with Lyme and Co, I find it very frustrating when our Minister and the HPSC is not up to date with the wealth of knowledge available - my 3 children have Lyme and multiple Co infections but have neither been notified, nor did they ever have a 'classic' rash as they were born with it! Yes, it is congenitally transmissible.
My youngest has been seen by more doctors and Consultants than I can remember, since birth, yet Lyme was never suggested. When I finally figured it out and had him tested - his test in Ireland was negative. I sent all our bloods abroad and they were all confirmed positive, but even though the accreditation of said German lab is the same as our Irish labs, our results are not recognised here. Hence, we have no access to treatment. My GP admits he has no knowledge of use. There are thousands of others in exactly the same predicament.
Our European neighbours are taking this seriously and affording it the reverence it deserves. Our citizens deserve better and if we continue on the back foot we will have a nation of chronically ill people, many of them children. That is not a future anyone wants.
Ursula Power
Posted on 5 May 2017 8:45 pm
As a person with Lyme and Co, I find it very frustrating when our Minister and the HPSC is not up to date with the wealth of knowledge available - my 3 children have Lyme and multiple Co infections but have neither been notified, nor did they ever have a 'classic' rash as they were born with it! Yes, it is congenitally transmissible.
My youngest has been seen by more doctors and Consultants than I can remember, since birth, yet Lyme was never suggested. When I finally figured it out and had him tested - his test in Ireland was negative. I sent all our bloods abroad and they were all confirmed positive, but even though the accreditation of said German lab is the same as our Irish labs, our results are not recognised here. Hence, we have no access to treatment. My GP admits he has no knowledge of use. There are thousands of others in exactly the same predicament.
Our European neighbours are taking this seriously and affording it the reverence it deserves. Our citizens deserve better and if we continue on the back foot we will have a nation of chronically ill people, many of them children. That is not a future anyone wants.