Shane Moynihan (Dublin Mid West, Fianna Fail)

I appreciate the efforts of the Minister in this regard and I have conveyed that to the families involved. I am very grateful for the Minister's proactive approach. The beauty of getting an early access scheme right is that it does not necessarily rely on the proactivity of the State to be involved in that process but, rather, the partnership is hardwired into every piece of the system and the State is empowered to get value for money but also to ensure timely access to these drugs. In many cases of patients with rare diseases, time is the issue when it comes to stopping the deterioration of their conditions. I ask the Minister to keep us updated on the Department's progress in looking at these international models and to ensure that the best practice we learn from those is applied in any such Irish case.

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