Shane Moynihan (Dublin Mid West, Fianna Fail)

The Minister is no doubt aware of the cases of those who suffer with Duchenne muscular dystrophy, a matter which has been raised in the Dáil a number of times, as well as with the Minister directly, not least because of the Thompson boys in my own constituency. This has brought into focus the need for an early access scheme for rare disease drugs. I know there is a commitment to this in the programme for Government that has been discussed before. What considerations is the Department is taking into account? Is it looking at other models internationally of how such a scheme might be applied?

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