Natasha Newsome Drennan (Carlow-Kilkenny, Sinn Fein) | Oireachtas source

Four weeks ago, I raised with the Taoiseach the case of four-year-old William Jonathan Moore who has been diagnosed with a life-threatening condition, Duchenne muscular dystrophy. As I said at the time, his condition is so rare that no treatment is available in Ireland or the EU. William has been accepted for treatment at the Boston Children's Hospital but the United States is not covered under the treatment abroad scheme. The Taoiseach told me here in the Dáil:

If it is only available in the US, we should do something about that. I will come back to the Deputy about it and will talk to the Minister for Health.

In the past four weeks, neither I nor William's family have got any update despite our requests. How is this acceptable? The Taoiseach said we should do something about it and that he would talk to the Minister. Is he actually going to do something to help this family? Will he stay true to his word? Is he going to talk to the Minister for Health to help to find a solution for William and his family? This is a time-sensitive case.

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