Pádraig O'Sullivan (Cork North-Central, Fianna Fail) | Oireachtas source

This Friday is Rare Disease Day 2025, the last day of the month. It is a topic I have mentioned to the Taoiseach over and over again. I am asking this question as the programme for Government makes a number of commitments, one being the investigation of new methods for earlier reimbursement of certain treatments including early access schemes for rare diseases. It also states that we will work more efficiently with our EU counterparts in progressing arrangements like the Beneluxa Initiative that has been under way for a number of years, albeit heretofore that arrangement has only approved three drugs in the space of four years. I am asking the Taoiseach that in this term he ensures the Government will prioritise the issue of rare diseases once and for all.

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