Dáil debates

Thursday, 4 July 2024

Ceisteanna ar Pholasaí nó ar Reachtaíocht - Questions on Policy or Legislation

 

12:50 pm

Photo of Robert TroyRobert Troy (Longford-Westmeath, Fianna Fail) | Oireachtas source

I am raising the case again of a four-year-old constituent of mine, Clodagh Walsh, who suffers from a rare, life-limiting and devastating degenerative neurological condition called Dravet syndrome. In six months in 2023, she was attended to five times and airlifted twice. Since she started on a drug called fenfluramine, she has had no seizures and it has been life-changing for this young girl. The company marketing fenfluramine submitted an application to the HSE to have this medicine added to the reimbursement list in July last year. It is on the reimbursement list in the UK, France, Germany and the Netherlands. I understand there is a child who has the same condition in Cork who has been approved and is having this treatment paid for. I want to know why somebody in Cork can avail of it and someone in Westmeath cannot.

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