Robert Troy (Longford-Westmeath, Fianna Fail) | Oireachtas source

I wish to raise the case of four-year-old girl from my constituency. I will share her name with the Taoiseach afterwards. This young girl suffers from a very rare form of epilepsy. Since October 2023, she has arrested five times and has had to be airlifted by ambulance twice. Thankfully, she has started on a new treatment called Fenfluramine. Unfortunately, the HSE is not funding that and the family has to fund it at a cost of €140 per day. This drug is being used for epilepsy across the EU and Northern Ireland but for some strange reason, it is not being funded by the HSE. No family could sustain that cost on a daily basis and we do need to support families. The Taoiseach is a father and I am a father. What this family is going through is unimaginable. I ask the Taoiseach to intervene to ensure the State will fund this much-needed treatment.

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