Pádraig O'Sullivan (Cork North Central, Fianna Fail) | Oireachtas source

I want to raise again the issue of rare diseases. The Taoiseach might have seen the news that last week, thankfully, the drug Libmeldy was approved for patients who suffer from metachromatic leukodystropohy, MLD. I pay tribute to the parent of a child who passed away a number of years ago. Les Martin sadly lost his son, Cathal, a few years ago to this disease. We saw and heard from Les last week. He has been campaigning for a number of years because he has a second child who is also affected by this disease. Thankfully, his second son can avail of this drug because it was approved last week.

This disease can be caught with the heel prick test when a child is born. I ask the Taoiseach to provide us with an update. I understand that there is a review currently to expand the heel prick test. Will the Taoiseach elaborate on whether this particular ailment could be picked up through the heel-prick test into the future?

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