Denis Naughten (Roscommon-Galway, Independent) | Oireachtas source

Approximately one in 12 people in Ireland will at some stage in life be affected by a rare disease. When family members, many of whom are carers, are included, this means approximately 825,000 Irish people are impacted by a rare disease. The Taoiseach will recall that the programme for Government published in 2020 contained a commitment to deliver a revised national rare disease plan to replace the one that lapsed in 2018. As he is aware, 29 February next is Rare Disease Day. In light of the fact that the Government made a commitment four years ago to introduce a new plan and that the forthcoming Rare Disease Day will be the last one for this Government, will the updated plan be published and available by that date?

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