Pádraig O'Sullivan (Cork North Central, Fianna Fail) | Oireachtas source

Last week, I raised with the Taoiseach the issue of the appointment of a HSE rare disease liaison officer. To be fair, he said he would come back to me on the matter. It has only been a week since then and I do not expect a response from him at the moment. I submitted a question to the Department of Health at approximately the same time, however, and received a response this morning. The response referred to the establishment of a rare disease office, a rare disease policy unit, the announcement of a new rare disease plan, the opening of a new patient advocacy service and the establishment of a new rare disease information hotline. None of that pertains to the question I asked, however, so I am asking the Taoiseach, in the context of responding to my question in the coming days or week, if he will, please, try to source an answer in respect of the appointment of a rare disease liaison officer.

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