Michael Lowry (Tipperary, Independent) | Oireachtas source

I thank the Taoiseach for his commitment and personal interest in the matter. The Minister of State, Deputy Butler, has been very active on the issue. I do not know where the blockage is, but it appears to be between the consultants and the nursing profession. There is no joined-up thinking on this and it needs to happen. Families living in the south east have been without this service since 2017. I cannot be precise as to how many children and families have suffered as many have done so in silence.

Despite her personal grief, Danny’s mother, Lisa, has maintained her campaign to ensure that paediatric palliative care is available to everybody and that no one has the same experience as that family has had.

The Taoiseach mentioned the girl from Wexford and I am familiar with that case. I have also had contact from the mother of Róisín an 11-year-old girl in Tipperary town. They are in similar circumstances. This cannot be put on the long finger and needs to be dealt with as a matter of urgency.

In a letter sent just one week ago, which I followed up on, Róisín's mother outlined her anxiety, fear and trepidation at the fact that something desperate could unfortunately happen shortly and she is not in a position to cope with it. I ask for that case to be dealt with urgently.

See this speech in context