Dáil debates

Wednesday, 15 February 2023

Ceisteanna ar Reachtaíocht a Gealladh - Questions on Promised Legislation

 

12:52 pm

Photo of Pádraig O'SullivanPádraig O'Sullivan (Cork North Central, Fianna Fail) | Oireachtas source

In two weeks, on 28 February, we will mark Rare Disease Day. A few hundred thousand people in this country suffer from a rare disease while more than 6,000 rare diseases known at present and many more are undiagnosed or unidentified. I am asking the Taoiseach, as I have done previously, and the Minister for Health, both publicly and privately, about the Mazars report, the reimbursement process in this country and how we do our business. I was under the impression that this report would have been published at this stage and to my knowledge, that still has not happened. Will the Minister clarlify where the Mazars report is? Coming up to Rare Disease Day, it would be welcome if it could be published beforehand.

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