Thomas Pringle (Donegal, Independent) | Oireachtas source

I met with families from Donegal Town, Inver and Ramelton in my constituency outside the Dáil today. Families from all across the country were at the gates of Leinster House as part of Cystic Fibrosis Ireland's support the Kaftrio 35 campaign. Some 35 young children with cystic fibrosis are currently deprived of a groundbreaking new drug due to a pricing dispute between the HSE and the provider, Vertex. It is wrong that these children should continue to be deprived. The Taoiseach should act to ensure the Minister for Health and the HSE respond to make sure this drug is provided to these young people. It can alter their lives significantly and save the State money in the long run, which seems to be the only thing the State understands.

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