Dáil debates

Wednesday, 1 June 2022

Ceisteanna ar Pholasaí nó ar Reachtaíocht - Questions on Policy or Legislation

 

12:52 pm

Photo of Joe CareyJoe Carey (Clare, Fine Gael) | Oireachtas source

Kaftrio is a miracle drug used for the treatment of cystic fibrosis patients. It was approved by the European Medicines Agency, EMA, in January. Thankfully, 140 children in Ireland are now using it. A further cohort of 35 children have been locked out of the scheme relating to the drug and are anxiously trying to gain admission. Cystic Fibrosis Ireland has sought a meeting with the Minister for Health. I hope he will agree to that meeting to explain the delay and outline what will be done to ensure that this cohort of 35 children get access to Kaftrio.

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