Pearse Doherty (Donegal, Sinn Fein) | Oireachtas source

Feicimid go bhfuil sonraí foilsithe ag "RTÉ Investigates" maidir le bailiúchán sonraithe de chuid na Ranna Sláinte ar pháiste a raibh uathachas agus míchumais fhoghlamtha eile orthu le smál a chur orthu agus ar a gcuid teaghlach. Bhí na teaghlaigh sin ag troid trí na cúirteanna agus le modhanna eile chun seirbhísí mar is ceart a fháil dá gcuid páistí. Tá an scéal seo scanrúil agus mí-eiticiúil. Is náire é gur tharla sé agus tá ceisteanna le freagairt ag an Rialtas maidir leis. Cad a bhí ar eolas aige agus cén uair?

This morning the "RTÉ Investigates" programme published shocking revelations stemming from the disclosures of a whistleblower in the Department of Health. This relates to children with autism whose families have fought to ensure their children got proper access to services to which they should have been entitled. Unbeknown to these families and the children, the Department of Health had been gathering information on them for many years, specifically to defend legal cases the families considered bringing to vindicate the rights of the children's access to services.

It is truly and absolutely shocking that this is and was going on. It highlights an attitude of suspicion and contempt towards families that is simply unjustifiable. This information on file in the Department's database includes detailed medical and personal information that any right-thinking person would believe is covered by doctor-patient confidentiality. Instead of assisting families in accessing proper services for children with a disability or a learning difficulty, we had instead the Department of Health playing private investigator, trying to dig up dirt on parents who had already been through the mill. The information that was gathered is clearly very sensitive, intimate and, very often, completely unrelated to any litigation. It is at the very least invasive and disproportionate. In reality it is dishonest, totally unethical and possibly illegal. It represents a monumental breach of trust.

The database in which this information is stored, despite its incredible sensitivity, is available to a whole division in the Department of Health for access. It includes items such as reports from schools, details of psychiatric consultations involving children, and videos of children in a distressed state. It is absolutely alarming that personal information, which parents gave in confidence to their child's doctor at a time of family crisis, would be collated by the Department of Health in this manner to be used against the families as a tactic in litigation to prevent families getting the additional supports they sought.

The severity of this is, quite frankly, unquantifiable. There are many questions we all need answered. We know the whistleblower in question raised concerns with bosses in the Department of Health. Does the Tánaiste know when that was? Who was the Minister with responsibility for health at the time? Was that Minister informed of the fact a protected disclosure was made by the whistleblower last year?

This practice has clearly gone on for many years in the Department of Health. As a former Minister, did the Tánaiste know this practice was ongoing and the Department was gathering this type of sensitive information, which it had no right to access in the first place? It told doctors not to tell families that this information was being provided to the Department. Was the Tánaiste aware of this practice when he was Taoiseach? Was he made aware of it? Will the internal examination by the Department of Health into this practice be made public? Is this practice of gathering private information, none of which could be considered relevant to possible litigation, still ongoing in the Department?

See this speech in context