Simon Harris (Wicklow, Fine Gael) | Oireachtas source

I know the Deputy has been advocating on behalf of this group of patients for a considerable period and I thank him for his work in that regard. What he has stated is correct. My officials and I have met several Deputies, including him, in respect of this matter, and I have met several of the patients awaiting this drug and their families. I am disappointed that some are still waiting for it. Rather than giving false hope or false commitments, I will arrange to meet the Deputy via videoconference or telephone early next week and I will speak to the CEO of Children's Health Ireland in the meantime to try to get timelines. I will revert to the Deputy on the matter.

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