Thursday, 7 November 2019
Ceisteanna ar Reachtaíocht a Gealladh (Atógáil) - Questions on Promised Legislation (Resumed)
John Curran (Dublin Mid West, Fianna Fail)
In June of this year, the HSE agreed to make the drug Spinraza available for children with spinal muscular atrophy, SMA. Three weeks ago a number of colleagues raised the matter on the floor of the House because there was concern that none of the 25 children had received the drug. We had anticipated that we might get a note subsequently. The question remains the same. How many of those 25 children are receiving the drug and when will the remaining children get access to it?